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Has anyone been diagnosed with Central Sensitization?

Chronic Pain | Last Active: Mar 6 10:01am | Replies (195)
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@jgl15

Hi everyone, I was preliminarily diagnosed with Central sensitization today at the Mayo clinic in Jacksonville. My experience seems a little different than everyone here, the diagnosis is very new, so I'm a little confused. I'm on the chronic fatigue side rather than pain. I have oddball pains that come and go in my piriformis bone for example, but no other chronic pain. But I'm extremely sensitive to alot of things. Severe sleep issues out of no where, and sudden mood changes. Antipsychotics have been the only thing to help the sleep. And bad reactions to numerous medications, heat sensitivity, horrible menstrual periods... Has anyone had similar experiences?

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Replies to "Hi everyone, I was preliminarily diagnosed with Central sensitization today at the Mayo clinic in Jacksonville...."
John, Volunteer Mentor | @johnbishop | Oct 4, 2018

Hi @jgl15, welcome to Connect. I'm tagging @relientkitten who shared the following link that may be helpful and she may be able to share her experiences with you here. This is the link she shared:

Central Sensitization Syndrome and the Initial Evaluation of a Patient with Fibromyalgia: A Review by Dr. Kevin Fleming and Mary Volchek, RN (Mayo Clinic)
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4422459/

Have you tried anything besides the medications to help you sleep?

John

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uldiver | @uldiver | Oct 4, 2018

I tried to post and it deleted it. Trying again.
I, too, was diagnosed with CS (not bc of pain, I have pain, but it’s under control and not constant), but bc of SEID/ME/CFS. I disagree with the CS dx (diagnosis) unless this applies to ALL neurological disorders bc as I learned in my neuroplasticity book that pretty much all neurological dx’s place people into sympathetic nervous system (SNS) overload. I have dedicated a ton of time to research of neuroplasticity, Central sensitization and primarily ME/CFS. The ME/CFS symposium was this weekend. Open medicine foundation (OMF.ngo) is leading the research at Stanford. NIH gives $5 mil to research this horrible disease (compared with $150 mil to MS). We are 50 years behind on the funding and research, but the new clinical trials are promising!! I have not viewed the whole symposium yet, but it is available to the public now.
Ammes.org
Solvecfs.org
Good luck on your journey. FB has a good ME/CFS support group also. I hope to go to Stanford in the next year or 2 to help contribute to finding biomarkers and a cure!
Lastly, after you research and learn, please share with your Mayo providers and local providers. I’m finding I’m at acceptance phase and advocacy as nobody knows about this at all which leads to misdiagnosis and poor treatment. Education is everything!
Also, Dr. Sarah Myhill’s YouTube videos and book (2nd Ed). Are great and Gary Kaplan’s YouTube videos (3 part) are also very informative.

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