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We are from Canada and my husband was just diagnosed yesterday.

Esophageal Cancer | Last Active: Oct 31, 2023 | Replies (17)
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@colleenyoung

Welcome Canucks!
@justtrust, are you and your husband still going through the diagnostic process? Do you have a stage and treatment plan?

@jane59, your sister's story of 5 years living with stage 4 gives hope to many. I appreciate your sharing about her. Do you live near her or were you supporting her from a distance?

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Replies to "Welcome Canucks! @justtrust, are you and your husband still going through the diagnostic process? Do you..."
justtrust | @justtrust | Aug 10, 2023

Yes, still going through the diagnostic process. Today he sees the surgeon for a 30 minute consult. The cancer clinic hasn’t called us yet.

A scope, CAT, and PET were done in quick succession after waiting months for the scope. That was pretty scary and made it apparent that they were expecting something “more disastrous” than Achalasia.

Poor guy hasn’t been able to eat seamlessly for 6 months now.

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justtrust | @justtrust | Sep 17, 2023

Hi Colleen,
We now have a diagnosis and prognosis.
It’s Stage 4 esophageal cancer. Poorly differentiated adenocarcinoma (it’s crazy that my predictive text knows these words; I’d never dreamed that could happen to us). It’s terminal. He’s begun chemo and immunotherapy. His first cycle went well (so far) with minimal side affects. I’m exploring molecular hydrogen as well.

Our medical team is great; however, it sucks to live in a place where it took them 5 months to even get the diagnosis. Further, the radiologist made a major error in March that significantly delayed the process.

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