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@nancy1947

I was on prednisone for 4 months. My hearing got better for a few days then got worse again. Then I got an injection in my ear, and nothing got better for 2 weeks. My hearing came back but only lasted a few days. I was referred to a rheumatologist and have had lots of labs done. I have appointments with the ENT and rheumatologist in 3 months to determine what to do next. I attributed all my symptoms to prednisone, but I’ve been off it for 2 weeks and still have fullness, brain fog, dizziness and fatigue.

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Replies to "I was on prednisone for 4 months. My hearing got better for a few days then..."

At this point do everything they want. Then check it all out. Who knose/ Perhaps you will find out a few more things (Bad or Good) Work with it.

Nancy, the dizziness, lightheadedness and tinnitus, unfortunately, is all part of the AIED. You can get therapy for the lightheadedness and dizziness. It may or may not help, but they can show you some techniques to get your body used to it. I too have the lightheadedness and dizziness as your hearing loss fluctuates that is going to cause more lightheadedness and dizziness. The tinnitus is also a result of the hearing loss, which I’m sure you know, and the fatigue which again as stated by some other people it could just be the auto immune disease so learning to adjust to that. I found mine was the prednisone, but we’re all a little bit different. I have a rheumatologist I am currently taking prednisone methotrexate and Humira I have been going through this for a year so my hearing loss is still fluctuating. I did have the shots in the ear, it did help a little bit at this point. I’m just kind of waiting to see how long it keeps it where it is and then if it continues to fail , at some point, I may become a candidate for a cochlear implant. I’m surprised they gave you waiting for three months. Make sure that if you notice that hearing fail you get a hold of one of them right away and get back in there. They’ll probably put you back on the prednisone for a little bit don’t wait. Keep me posted on how you’re doing. Is it both ears or just one?

Why must everyone wait three months or more? So we can die and suffer while waiting? This makes absolutely no sense. Are the doctors following orders from ???? Well now, my insanity is showing. We know this makes no sense. Time TIME, TIME, is very important. Will they bring the whip back? Perhaps anything goes now. I must hide they are coming for me now. bye bye