Yes I was diagnosed with this a number of years ago. It’s been a long process to even begin to try to manage it because I’ve needed major brain and spinal surgery within a year of each other.
My nervous system operates on high with highly sensitive damaged nerves contributing to an already battered body. It’s been incredibly important and helpful for me to learn and regularly practise meditation. I take time out several times a day to meditate and try to include mindfulness in as many things as possible.
For me management has been about working with it as opposed to trying to change it which can be extraordinarily difficult. As humans beings when we experience pain we want to stop it. Whilst wanting to rid ones self of pain is normal it’s so ideal for those suffering chronic pain as it’s often an u realistic goal. Coming to terms with that and making peace with the idea that chronic pain will most likely be part of my life indefinately, immediately set a different attitude in my mind and I began to work with it as opposed to it.