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Rachel and Jennifer,
Thank you for sending this video!
I am sure that I have CSS, at some levels. Any stress totally aggravates my butt pain…probably the worst thing in my life now. Diagnosed recently with ischial bursitis, which makes sleeping, sitting for any short time, of course travel, etc etc really miserable or undoable. I was diagnosed with Levator ani syndrome about 4 years ago, and asked how to heal it. Doctor said no way to heal. Time…??? Unbearably painful. It has eased up some, and my urologist had helped with some rectal meds that take the edge off.
All of this after an accident that left no visible or obvious damage.
I have severe scoliosis, so I am sure there was some nerve damage as I braced for the big hit.
As the video mentioned, I was a type A, golfing, skiing, sailing, gardening, hiking…didn’t even know I had scoliosis until I was 50 with a routine chest X-ray.
I am otherwise very healthy for 71.
Now I go for a dentist appointment, routine check up etc, not to mention a treatment of some sort, and my normal low blood pressure skyrockets.
I go home and take my blood pressure for three days, just to make sure it is still normal.
Gave up all the meds, except for some low dose naltrexone, which was recommended recently.
I just want my life back at some level and unsure how to do it.
Florida Mayo is like 4-5 hours away.
Does insurance cover this three week program-where do you stay?
Are there any books, videos, or programs of this sort that are closer to Augusta GA?
Anyone out there have experience with this type of healing process? Would be great to hear from you…
Thanks again…
ch47
Replies to "Rachel and Jennifer, Thank you for sending this video! I am sure that I have CSS,..."
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Hello @ch47 - You say what many others who live with chronic conditions say, "I just want my life back". The good news is that you can get your life back - it may look different than what you were accustomed to however, but Mayo Pain Rehab Center can definitely show you how to do it. I'm a prime example, I graduated the PRC two and a half years ago and it was one of the best things I'd ever done for myself and overall well-being. While my conditions and symptoms remain, they have lessened and are better managed from 4 perspectives:
1. Physically
2. Emotionally
3. Behaviorally
4. Chemically
Yes, insurance covers the program. I was covered by Medicare with an out-of-network supplement plan. I live in NY so I did incur the out of pocket expenses of travel, hotel and meals. I'm unsure of whether there are any comprehensive pain rehab programs near Augusta, GA. Have you googled or checked with your PCP?
Here's a helpful overview of the Mayo PRC program. It provides detail of what to expect:
Mayo Clinic Pain Rehabilitation Center -
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Also, here is a direct link to apply to Mayo Clinic should you choose to get the ball rolling:
Mayo Clinic Application -
http://mayocl.in/1mtmR63
You can complete electronically or call direct and speak to a Mayo representative. Everyone at Mayo is extremely helpful and courteous.
You may find the following discussions informative as well in learning about other members experiences with the PRC:
Mayo Pain Rehab program- Signing off and my comeback afterwards -
https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/
Mayo Pain Rehab Center (PRC) - What's Your Experience?
https://connect.mayoclinic.org/discussion/mayo-clinic-prc-whats-your-experience/
Lots of homework! I want to congratulate you on giving up all meds except LDN. That's not always easy, and you are much further ahead of the game. What other questions may I answer for you? Do you feel that an all-inclusive rehabilitation approach would be beneficial?