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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Jun 25 3:06pm | Replies (217)
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@tinae

Hi Nancy, I’m sorry that you’re going through this I’ve been diagnosed for about nine months. I am always tired and kind of in a fog but I’m attributing that to the prednisone that I’m on her you on meds?

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Replies to "Hi Nancy, I’m sorry that you’re going through this I’ve been diagnosed for about nine months...."
nancy1947 | @nancy1947 | Aug 9, 2023

I was on prednisone for 4 months. My hearing got better for a few days then got worse again. Then I got an injection in my ear, and nothing got better for 2 weeks. My hearing came back but only lasted a few days. I was referred to a rheumatologist and have had lots of labs done. I have appointments with the ENT and rheumatologist in 3 months to determine what to do next. I attributed all my symptoms to prednisone, but I’ve been off it for 2 weeks and still have fullness, brain fog, dizziness and fatigue.

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