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Anyone out there with Autoimmune inner ear disease (AIED)?
Autoimmune Diseases | Last Active: Jun 25 3:06pm | Replies (217)Comment receiving replies
I’m a newbie here. I have had AIED for four months. I have read many of your posts and it’s comforting to know others are struggling with the effects of this condition but are managing. I have all the typical symptoms. Hearing loss, dizziness, imbalance, tinnitus , fullness in the ear. But I am so tired all the time! I’ve always been an avid gardener and active even though I’m 76 years old. Now I can do very little without being totally exhausted. I have to take afternoon naps just to get through the day. Does anyone else have fatigue associated with AIED?
Replies to "I’m a newbie here. I have had AIED for four months. I have read many of..."
I do not know what AIED is but I am told that I have three auto-immune diseases. Lets see . PsA psoriatic arthritis, rheumatoid arthritis and at age 86 I cannot remember he third. The SHPTD has thrown away my secondary the diabetes type two. It is slowly eating up my body. But the worst is "Secondary Hyperparathyroidism. It has thrown away the diabetes type 2. But still check the blood in the morning as it might sneak back. So, keep the pills on hand just in case. It also has another goodie "COGNITIVE DECLINE". iSN''T THIS JUST A WONDERFUL THING. Also now have severe osteoarthritis. Who else is as lucky as I? B U T : I am pretty sure I have a real beauty PHEOCHROMOCYTOMA. In other words (the ones we can understand) A growth on the top of each kidney that among many, many other things brings the blood pressure much over 250 over the other. No medications will help and this causes severe aortic valve prolapse and so far moderate mitral valve prolapse. Let us see who will win, the heart or the kidneys? It also creates the secondary hyperparathyroidism. I am 86 but fit I walk two or more miles a day and do a great rock and roll ,jitterbug. If some of us oldsters can still keep up the beat why wont the surgeons remove the two critters on the tops of my kidneys? II am willing and will sign away. because this is starting to BRING ME DOWN. IF THIS IS THE NEW REGEIN PUT THEM IN MY PLACE FIRST AND THEN LET THEM SEE. I worked all my life and paid my New York taxes to deserve my chance to live a little longer. yah and clap y'all. Brooklyn Barbara
@nancy1947 I’m afraid that fatigue is a big part of autoimmune diseases. It’s one of the most difficult things about AD. Like many others, I’ve learned to manage it since I really can’t control it. I think you might like this discussion about how others manage their fatigue.
https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/
I think the original story, in which the author explains how she came to write the theory, is included.
Don’t give up hope. You will learn to manage it and go on with your life.
Will you let me know how the spoon theory can help you?
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Hi Nancy, I’m sorry that you’re going through this I’ve been diagnosed for about nine months. I am always tired and kind of in a fog but I’m attributing that to the prednisone that I’m on her you on meds?