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I learned the hard way that you need to go with your gut. I also followed your exact same protocol. At three years I had return of cancer at one of the incisions from the original surgery. Neither my Primary doctor nor my oncologist took me seriously as the tumor grew in my abdomen and was very warm to the touch. Neither actually looked or touched! In hindsight, I should have persisted earlier. I finally went to a known dermatologist who looked at it, and biopsied it within 20 minutes. Protocol is not to do a scan regularly as we don’t need more radiation in our systems to breed another cancer. I am now at Mayo. After I had the metastasis and was in treatment again, initially I had CT scans every 3 months then every 6. I am now cancer free for 3 years following immunotherapy and they are only seeing me yearly. A second opinion can ease your mind for sure. Peace to you on your journey. I am still on mine.
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Hi Karenlj!
Thankyou for your reply.
I am so sorry that your cancer reoccurred after 3 years!
Being an oncologist, your Dr. should know that the recurrence is always in the back or our minds, and they KNOW that it is TOTALLY a possibility.
And... listening to their patients; to YOU, is the way they find out if you are doing well, and if you have a complaint like " I know somethings wrong, I don't feel well, I think my cancer has come back, and I need some tests to diagnose the cancer, or to tell me that all is ok.
How hard is that?
I am already mad. Did you feel like when you went to her for your treatment, that she was compassionate, and she listened to you?
I am an RN, BSN, and (retired),, I get really steamed when our voices aren't heard and our bodies are not treated.
God bless you on your journey going forward! How are you feeling? Do you live close to the Mayo Clinic?
I feel right now, it's one day a a time. I hope we all continue to stay healthy and remain cancer free for the rest of our wonderful lives!!