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Newbie & scared

Breast Cancer | Last Active: Sep 27, 2023 | Replies (122)

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@mkb4435

Hi Friends. I'm feeling pretty upset after seeing my oncologist today. I know this sounds crazy as I should be overjoyed but I just can't trust the opinion she gave me.

I was diagnosed with triple negative (TNBC) invasive ductal carcinoma in early June, 2023. I was staged at 1B, grade 2. Genetic testing did not show anything worrisome. I was advised to do surgery first and I had a unilateral mastectomy; sentinel node biopsy show 4/4 nodes clear of cancer. My tumor was measured as .5 centimeters.

Today, 2 months after diagnosis, she told me that I am cured and cancer-free. I do not need to do chemo as I am low risk and the chemo could potentially do more harm than benefit. (She spoke as if there is only one chemo to be tried and nothing else to be considered but to be evaluated every few months.) She said that if I wanted a PET scan I would have to pay for it myself because no insurance would do so under the circumstances. I asked many questions and challenged this some. I see her point but I have not yet encountered anyone with TNBC who has been "cured" by surgery alone. I only read of how aggressive it is and feel like I would just be waiting for it to come back if I did nothing more.

I may get a second opinion but I would really appreciate some feedback, especially from others who have had early stage TNBC. Thanks.

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Replies to "Hi Friends. I'm feeling pretty upset after seeing my oncologist today. I know this sounds crazy..."

I would absolutely be looking for a second opinion if this were me. Mostly because It feels like she didn’t really offer you the information you needed to understand her recommendations.
You always have a right to have all of your questions answered, it also feels like there should be more discussion about the whole cured thing.
Do you have an idea of an out of network option for a second opinion?