← Return to Proton Therapy or Cyberknife without ADT for Gleason 8?

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@undetectable

We met with a Tulsa Pro doc - it would be $45k and there is no data about success with Gleason 8. But it sounds miraculous - could be the future. For those of you on the east coast, we know someone w/ Gleason 7 who had it at Yale in 2021 with great success (and I think insurance might have covered there).

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Replies to "We met with a Tulsa Pro doc - it would be $45k and there is no..."

Well the data for a real lot of the treatments is sometimes old, and by the time it is published the protocols change. Such as proton, Mayo does 5 sessions, but data on it is not out there from publications from the way they do it. It is still on my list of possibilities I might select even without publications. There is always risk. Tulsa with G8, all there is is going to be personal accounts such as on YouTube or other discussion boards. $45K sounds a lot more than I was quoted. Medicare will have a code for Tulsa in 1-2 years, I don't think for this coming January medicare changes, but is entirely possible. Much more likely Jan 2025 medicare changes so it would be insurance covered then but unlikely paid by insurance before that though some charges might be covered as standard hospital costs or whatever.

My thinking is Tulsa G8 can be repeated on other areas in a recurrence. Unless you went to some guy that said whole gland which isn't repeated. They can take out exact amounts (usually they mention some clock pattern with Tulsa). However Proton one drawback is it is not repeated for a recurrence as far as I understand, they just give ADT or external beam or some other options on recurrence/mets.

I can't say on cyberknife, I did read a few threads but not sure on that option.