Learn About NETs and monthly meetings

Hi All,

Tomorrow, Thursday, July 6, (from 5:30 to 7 p.m, EST) will be the monthly NETs Support Group meeting via Zoom. I'm excited to see that Dr. Thor Halfdanarson, a NET Specialist from Mayo Clinic, will be the speaker. You will learn a lot from this meeting!

In order to attend, you will need to register in advance. After registration, you will receive a confirmation email and the Zoom link. Here is the registration link,
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
For Questions or Concerns please call 904-953-7266

After the Dr. Halfdanarson speaks you will have time to interact with the other members of the group and share experiences. This is a great time to ask questions of others who are traveling the NET journey.

I would especially like to invite some of our newer NET members such as: @katinka58 @mikecincy @rshea1204 @lindack @zebraflower @chana @carm1011 and @rose4jim2417

I had the wrong time zone and missed the first hour of July 6 support group with Dr. Halfdanerson! How can I find the recording?
Thank you!
Elli

I watched it also and requested the site of recording also, no info received yet.

Thank you!

While I realize this is rather a late notice, I just received an email about an online presentation from the Carcinoid Cancer Foundation. It is today from noon to 1 p.m. EST.

What: Special Edition of Ask the NET Expert presented by the Carcinoid Cancer Foundation

Who: Cezar A. Iliescu, MD, FACC, FSCAI is the featured guest

When: Thursday, July 27, 2023, from 12 noon to 1 pm, Eastern Time

Where: CCF’s Facebook Page, https://www.facebook.com/Carcinoid/. Just come to the page at noon and the program will begin. There is no need to register nor is there a special link.

For anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs. To receive notifications of all new videos on our YouTube channel, CLICK LIKE, SUBSCRIBE and HIT THE BELL to receive notifications each time a new video is uploaded.

We are excited to present a Special Edition of “Ask the NET Expert” via Facebook LIVE taking place on Thursday, July 27th from 12pm til 1pm Eastern Time.

Our special guest will be Cezar A. Iliescu, MD, FACC, FSCAI.

Dr. Cezar A. Iliescu is an interventional cardiologist at University of Texas MD Anderson Cancer Center. Having over 29 years of experience, his specialties include Internal Medicine and Cardiovascular Disease. Dr. Iliescu is interested in vascular biology in cancer patients, endovascular treatment of patients with chronic thrombocytopenia, physiologic assessment of coronary stenosis, and treatment of radiation induced cardiovascular disease.

As you can see, if you are not able to attend during the live presentation, you can view it on CCF's YouTube channel listed above.

Hello All:

The monthly Mayo NETs Support Group will be meeting this Thursday, August 3, from 5:30 to 7 p.m. EST, via Zoom. You need to register in advance in order to receive the Zoom link. Here is the link to register:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
The meeting is hosted by a Mayo Clinic Social Worker. This meeting is a Round Table Discussion where you can meet other NETs patients and share experiences and ask questions of each other. For Questions or Concerns please call 904-953-7266.

Please join us and remember to register in advance so that you receive the Zoom link!

Many of you have crossed paths, been greeted and encouraged by @kim1965 as he shares his experiences as a caregiver supporting his wife living with NETs. Today's Member Spotlight, @hopeful33250 interviews @kim1965 to learn more about what brought him to Mayo Clinic Connect, what keeps him balanced, and if choosing between kittens and puppies... See his answers here:
- We got this: Meet @kim1965 https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/we-got-this-meet-kim1965/

Member Spotlights feature interviews with fellow Mayo Clinic Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.

See more Member Spotlights https://connect.mayoclinic.org/blog/about-connect/

Tomorrow, August 10, the Carcinoid Cancer Foundation (CCF) will be hosting a Facebook Live Event. As you will read, if you are not a part of FB you can still attend via YouTube. Here is the information:

Luncheon with the Experts
Daniel Halperin, MD

We are excited to present the next Luncheon with the Experts via Facebook LIVE taking place on Thursday, August 10th from 12pm until 1pm Eastern Time.

Our special guest will be Daniel M. Halperin, MD.

Dr. Halperin, is a medical oncologist and clinical investigator primarily focused on the development of novel treatments for patients with neuroendocrine tumors (NETs). He serves as chair of the NET Multidisciplinary Conference (Tumor Board) at MD Anderson, and represents the institution on the the Neuroendocrine and Adrenal Tumor guideline committee of the National Comprehensive Cancer Network (NCCN).

As a clinical investigator, he leads clinical trials of new drugs for patients with NETs at MD Anderson and works together with a team of laboratory and population scientists to understand more fully the molecular underpinnings and clinical manifestations of neuroendocrine tumors. He serves on the Board of Scientific Advisors of the NET Research Foundation and the Scientific Advisory Committee of the Healing NET Foundation, as well as chairing the North American Neuroendocrine Tumor Society Scientific and Research Committee in 2021.

If you have any non-case-specific questions, you are welcome to pose them during the presentation and Dr. Halperin will try to answer them LIVE! This Facebook Live event will be hosted by B. Rain Bennett a longtime CCF filmmaker and dear friend of the NET community. We hope you can join us! #LetsTalkAboutNETs

If you do not have Facebook, we will also be streaming LIVE on YouTube. Please visit our YouTube channel for past shows you may have missed or that you may want to watch again. To receive notifications of all new videos on our YouTube channel, CLICK LIKE, SUBSCRIBE and HIT THE BELL to receive notifications each time a new video is uploaded.

Are these recorded so you can watch them if you are not able to attend at the time they are streamed?