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Has anyone been diagnosed with Central Sensitization?
Chronic Pain | Last Active: Mar 6 10:01am | Replies (195)Comment receiving replies
I went through the PRC program in Rochester nearly a little under two years ago and can say, without hesitation, it changed my life!! I had been dealing with Central Sensitization Syndrome, and a vast array of debilitating symptoms for many years without the proper diagnosis. Before I got sick, I was active and proud of my career. I hadn't been able to do much of anything, let alone work, for about two years prior to attending the PRC. After the program, I was able to go back to work and do all of the things I previously loved - hiking, yoga, camping, traveling, etc!!! The PRC will help you learn how to manage your symptoms and live your life to its fullest potential. I always say to people...I am not who I was before chronic pain - I am even better! I credit all of that to PRC (and so do my family and friends who saw me go through everything). I'm happy to answer any questions you have about the program but my one piece of advice to you is this - it might seem strange at first. It might not "feel" like it's going to work but just trust it. It can work if you follow the plan. These are some of the world's most brilliant doctors and therapists who have researched chronic pain and understand what actually works. I (and many of my cohorts that I went through the program with) are living testaments to its success rates. Wishing you the very best of luck on this life-changing journey you're about to start on. Congratulations on getting the proper diagnosis, finding the program and taking the steps to take back control of this horrible monster (CSS/Chronic Pain) that ruins so many lives.
Replies to "I went through the PRC program in Rochester nearly a little under two years ago and..."
@kelseylmontague sounds like you had a better experience at Mayo Rochester than I did just recently. I've been there 5 times now ...signed up for the PRC in Feb 2019. May I ask who you saw at Mayo in neurology? Our stories sound very, very similar as far as what type of pain we experience. I've been living with this 5 years now. I too have a diagnosis of Central sensitization, fibromyalgia and intractrable chronic daily migraines.
Thank you so very much for posting this! My college age daughter was diagnosed in May, but was not sick for long enough for insurance to cover treatment program. She is now worse off than she was in May and I am trying to talk her into going to Jacksonville or Rochester, but she is quite skeptical. Still worries something else is wrong with her and as soon as she sees the words "group therapy" she balks, thinking that is proof they think it's all in her head and is also hesitant about opening up to a group of "strangers." Do you remember how much of the day was spent in group therapy? Any encouraging words or suggestions for how to talk her into this? Thank you!
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Hi. Thank you so much for telling your story. I posted I believe in this group already, but really wanted to tell you my story to see if you think Mayo could help me. You have finally given me a ray of hope. My name is Chris and I've had Chronic Fatigue, Chronic Migraine, and extreme Multiple Chemical Sensitivity for 28 years. Life is very difficult with this illness. I see that others have gone to the Pain Clinic and it has helped them, with this group of illnesses under Central Sensitization Syndrome. I did not realize that what I had was actually Chronic Pain and have been trying to treat the symptoms of chronic migraine, chronic fatigue, and chemical sensitivity:
migraine, confusion, brain fog, etc. What is the process for going to Mayo for this group of illnesses? Has anyone with Chronic Fatigue or Multiple Chemical Sensitivity and Chronic Migraine gone through the pain clinic for this diagnosis? My migraines have worsened recently and they are daily. I've been in bed basically for the past 4.5 months and thinking of going to Mayo. I only have Medicare and am on Social Security disability. Thank you! Chris