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CIDP, While I am waiting for the tests, genetic?

Neuropathy | Last Active: Sep 17, 2023 | Replies (44)

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@SusanEllen66

@sb4ca just heard from cousin. In his opinion, it would have to be Charcot-Marie-Tooth disease if it was genetic, and he doesn’t think that is what I have.

Crazy thing is that I was diagnosed with Polyarteritis Nodosa in 2015 and I assumed the neuropathy was caused by that. 🤷🏻‍♀️

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Replies to "@sb4ca just heard from cousin. In his opinion, it would have to be Charcot-Marie-Tooth disease if..."

I was tested for Charcot-Marie-Tooth. They fully expected me to have it, but I didn’t. My sister and I share many of the same symptoms, but mine are worse. My Dad and Granddad lived active lives with chronic pain. I have SFN, with the classic pain, now all over, and autonomic neuropathy, as it has affected my digestive system, bladder, etc. I was tested locally at a clinic for genomic medicine. They told me to just hang on, because new genomes are being discovered all the time. That I might get a call some day that they have identified mine, and then my sister can get tested as well. I’m not sure that it has to be CMT. I think that’s just the one that has been identified and studied the most.