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Thank you for the introduction, Jennifer @jenniferhunter. Along with the helpful CSS discussions provided, I also recommend watching the attached educational video by Dr. Sletten of Mayo Clinic's Pain Rehabilitation Center.
Dr. Christopher Sletten -Central Sensitization Syndrome:
https://youtu.be/vJNhdnSK3WQ
Dr. Sletten scientifically explains Central Sensitization Syndrome and breaks down a plan for management.
@ch47 and @emo, I'd love to hear back from you and know if you find the video enlightening or if any parts resonate with you. @ch47, I hope researching CSS will help you along with clarity about your journey.
@emo, you seem to have a pretty good handle on your management approach and have shared a lot of helpful info. A physiatrist seemed to be your key to unleashing a plan. My key was self-advocating by watching Dr. Sletten's video then applying to the MayoPain Rehab Center. Best move ever!
Replies to "Thank you for the introduction, Jennifer @jenniferhunter. Along with the helpful CSS discussions provided, I also..."
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Rachel and Jennifer,
Thank you for sending this video!
I am sure that I have CSS, at some levels. Any stress totally aggravates my butt pain…probably the worst thing in my life now. Diagnosed recently with ischial bursitis, which makes sleeping, sitting for any short time, of course travel, etc etc really miserable or undoable. I was diagnosed with Levator ani syndrome about 4 years ago, and asked how to heal it. Doctor said no way to heal. Time…??? Unbearably painful. It has eased up some, and my urologist had helped with some rectal meds that take the edge off.
All of this after an accident that left no visible or obvious damage.
I have severe scoliosis, so I am sure there was some nerve damage as I braced for the big hit.
As the video mentioned, I was a type A, golfing, skiing, sailing, gardening, hiking…didn’t even know I had scoliosis until I was 50 with a routine chest X-ray.
I am otherwise very healthy for 71.
Now I go for a dentist appointment, routine check up etc, not to mention a treatment of some sort, and my normal low blood pressure skyrockets.
I go home and take my blood pressure for three days, just to make sure it is still normal.
Gave up all the meds, except for some low dose naltrexone, which was recommended recently.
I just want my life back at some level and unsure how to do it.
Florida Mayo is like 4-5 hours away.
Does insurance cover this three week program-where do you stay?
Are there any books, videos, or programs of this sort that are closer to Augusta GA?
Anyone out there have experience with this type of healing process? Would be great to hear from you…
Thanks again…
ch47