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How did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 19 1:42pm | Replies (179)Comment receiving replies
Oh my…you have given me real hope! I expected this taper to take a very long time. I also have a team of doctors that are trying to help me taper in a way that doesn’t flare my other conditions. I am tapering 1 mg per month starting at 25mg. I have been taking 25mg for 3 years.
I really appreciate you sharing your story. It’s helped me a great deal!
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How is your team of doctors helping you? I suspect you have more than PMR going on since you have been taking 25 mg for 3 years. That was my problem because it wasn't PMR only but treated like it was. It was a full range of rheumatological problems which weren't fully revealed until I got off prednisone.
An ophthalmologist was involved because of uveitis. A neurologist was involved for trigeminal neuralgia.
An endocrinologist got involved for secondary adrenal insufficiency but that problem was caused by prednisone. Prednisone contributed its share of problems but certainly helped to control the pain.