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Has anyone been diagnosed with Central Sensitization?

Chronic Pain | Last Active: Mar 6 10:01am | Replies (195)

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@colleenyoung

@want2bme, I moved your message to this discussion where you'll meet @capefibro, @lolomarie and @leh09 who are talking about Central Sensitization and Fibromyalgia.

See the last paragraph of "What is Central Sensitization?" in this article http://www.instituteforchronicpain.org/understanding-chronic-pain/what-is-chronic-pain/central-sensitization

"Central sensitization has long been recognized as a possible consequence of stroke and spinal cord injury. However, it has become increasingly clear that it plays a role in many different chronic pain disorders. It can occur with chronic low back pain, chronic neck pain , whiplash injuries, chronic tension headaches, migraine headaches, rheumatoid arthritis, osteoarthritis of the knee, endometriosis, injuries sustained in a motor vehicle accident, and after surgeries. Fibromyalgia, irritable bowel syndrome, and chronic fatigue syndrome, all seem to have the common denominator of central sensitization as well."

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Replies to "@want2bme, I moved your message to this discussion where you'll meet @capefibro, @lolomarie and @leh09 who..."

This is very interesting to me. I have posted on different support groups because doctors do not have a clue what is wrong with me. I had a stroke in 1998 (49 years old) It affected my dominant right side. Have had pain on right side since especially right leg & foot. Also never felt good after stroke, hard to describe, but always nauseous with GERD, bowel problems, fatigue. Went to Mayo Clinic one year later, only thing that figured out was maybe had IBS. Tried various antidepressants (made me feel worse) Tried ECT treatments - nothing. Put on Methadone for pain and Alprazolam for anxiety. Hospitalized for hypercalcemia (after diagnosis of osteopenia & told to take more of the Tums that I was taking for GERD) Then diagnosed with hypothyroidism which increased fatigue, caused weight gain, bowel issue (not constipation) Then had my gallbladder removed-had a gallstone size of golf ball. More pain. At the time, a nurse asked if I had fibromyalgia because of pain. When asked doctor at pain center about this, it was dismissed for some reason. So went for number of years just living with these things, taking pain & anxiety meds, feeling lousy & in pain. In 2016, started getting bad lower back pain & sciatica pain in right hip. Found out I had stenosis, had spinal fusion L4-L5. This was a horrible experience, mostly because I was in horrible pain after surgery but everyone just thought I wanted more pain meds. I spent 15 days (10 in rehab) and was about to be sent to a nursing home for more rehab when finally after throwing a fit about the amount of pain I was in, doctor had a MRI done. I had a blood clot in base of spine causing the pain. That really set me back. Also started a long line of specialists because again no one could find anything wrong. Doctor told me maybe I needed therapy. So changed doctors again. Went off pain meds (on Oxycontin & oxycodone), started using medical marijuana. Then covid hit-got first two shots and went from hypothyroid to hyperthyroid. This naturally made me feel worse. Then I caught covid and maybe I have long haul covid. It has taken 3 years to get my thyroid normal? Then I had genetic testing done, found out I have the MTHFR gene variation T/T. Started methylated vitamins, which made me feel little better. But now have osteoporosis & last labs show extremely high PTH levels but slightly elevated calcium. So did 24 urine catch-normal calcium. All I want is to feel better. It's been 26 years and maybe it's my age (75) but I seem to feel worse every day. I am so frustrated by the medical field.