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Ischial bursitis

Bones, Joints & Muscles | Last Active: Jan 23 7:31am | Replies (51)

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@emo

So sorry I forgot to reply! Sometimes I get a lot of notifications and then just kinda lose track >_< I didn't intend to ignore you.

Did you end up feeling like central sensitivity was a fit for your experience?

My PT was the first person to bring up central sensitivity. They use a framework called the "Continuum of Pain Mechanisms" to identify where you fall on this spectrum, and depending on how your brain/body is responding to stimuli and creating pain (especially chronic pain), there are often particular approaches that can work better to retrain the brain and lower the volume on the pain signals. I fell way on the farthest end of the spectrum for the most persistent pain--which always includes central sensitivity.

Interestingly, she didn't really refer to it as a "diagnosis" (she has repeatedly said she's "not into labels," which I always told her was fine for her, but a label and credibiilty is what gets a patient access to care in this situation!)

Technically, the first physician to type it up in my chart was a physiatrist (physical medicine + rehab) physician at Mayo Clinic. From being at two Mayo campuses (long story), it seems their physicians have drastically much more awareness and motivation to treat central sensitivity (though also from my experience, it's sometimes missed the mark or wasn't the best fit for me). Other physicians I have seem aware of it in various amounts, but no one's really gung ho about trying to help me treat it. Physiatrists seem most aware of it, also PTs (though not everyone), and I got lucky and my PCP treats many people like me. But by the time I found her, I'd already gotten a lot of help from my PT and physiatrist.

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Replies to "So sorry I forgot to reply! Sometimes I get a lot of notifications and then just..."

@ch47 @emo I happen to notice your comments here. You may be interested in these discussions about Central Sensitization where you can connect with other members and our mentor, Rachel @rwinney who knows a lot about this subject.

Chronic Pain - "Has anyone been diagnosed with Central Sensitization?"
https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-central-sensitization-if-so-id-like-to/

Chronic Pain - "Central Sensitization - please share your stories"
https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/

Would this be something like bio feedback? The new pelvic pt in town practices this…