Hi,
His primary is undetermined. It has metastisized to liver, lymph nodes, mesentery, and the fat pad between liver and kidney. He was told he had carcinoid heart disease from carcinoid syndrome. His two right heart valves were like flood gates that were stuck open. The heart tumor wasn't causing any problems and the cardiac surgeon said he might not have touched it except it was right where he was going to cut for the surgery. Our NET specialist doesn't think we will have any surgically removed. The hope is that Lanreotide will stop them from spreading and producing hormones. She has said even though there are multiple tumors they aren't causing him issues. At this point we are trying to get the carcinoid syndrome under control.