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Hardware failure from fusions

Bones, Joints & Muscles | Last Active: Aug 9, 2023 | Replies (21)

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@jola13

Sorry to hear what you are going through. This is my story I had a cervical spine op fusion and discectomy with instrumentation that had to be removed but broke while being removed I couldn't talk for 3months as my vocal chord was paralysed plus I still have a deficit a screw was left behind which I can constantly feel - I also have to be careful not to choke as there is now a narrowing. My discs on either side of the fusions c7-8 and c3-4 have crumbled and fused. They will not touch me now as there is too much scar tissue and they could damage the Vagus Nerve. I also had a Lower spine operation in 2011 which went wrong , ALIF and PLIF L3-4-4-5-5-S1 with instrumentation 4 0ps in total. The first op was the Anterior entry, 7 Days later Posterior entry.
It was found that the cage which was put in was too small, so a larger one was put in 14 days after the second op. After about 3 weeks while moving in my hospital room I got a thunderclap headache and had to lie down. We found out that I had a dural tear which had happened during the 3rd surgery they had tried to fix this with a blood blister but it failed. As days went on I suffered from intense pain, and sickness drifting in and out of consciousness - it turned out I had bacterial meningitis, a subarachnoid bleed, a dural tear and brain droop, I was told I died 3 times. I was in intensive care for 3 weeks in the hospital for a total of 3 months. In the last month of my stay, I had my 4th operation to repair the tear my consultant surgeon had an eminent brain surgeon to help with the repair. It was a success, I had to learn to walk again. I was in the hospital from the beginning of September to December 100 days. I now have residual pain from my instrumentation I cannot touch the area (across the sacrum) and after walking I feel a lot of pain also. I have had injections including nerve blocks, and nothing has helped but I am grateful I am alive.
8weeks ago I was also diagnosed with a Blood Cancer chronic myeloproliferative disease - between Essential Thrombocythaemia ET and prefibrotic myelofibrosis with Jak 2, but as my dear father also said when he was alive " Keep smiling my Darling"

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Replies to "Sorry to hear what you are going through. This is my story I had a cervical..."

Oh my gosh. You have been through sooo much. I am sorry. Can I ask you to explain the difference between hardware pain that you felt and residual pain? I have two different doctors telling me different things. I have one saying I have residual pain from all the surgeries and I have another telling me the pain k have is hardware over my SI joint. The pain I feel is in the SI area and bone. It feels like a sharp dull pain as if there is a knife sticking out of my bones.
Again I’m so sorry you have been through so much. Im praying that things will get better for you. It’s amazing you have such a positive attitude with everything you have been through and are currently going through. Hugs to you.

@jola13 I really like your positive attitude. It takes courage to share a story like yours, and I'm glad you are here. My gosh, you have been through so much, and I was going to suggest you connect with our mentor Lori in the Blood Cancer group, but I see you've already found her. I am sorry all this happened to you. Did your vocal cord reactivate on it's own, or was that another surgery to treat that? Was learning to walk again a recent recovery?

You must be immersed in a lot of treatment right now for your blood cancer. I hope that by sharing your story, you fund a purpose for all of this. I am sure that you have a difficult road ahead.

Bless you,
Jennifer