← Return to Just diagnosed with tortuous colon

Discussion

Just diagnosed with tortuous colon

Digestive Health | Last Active: Sep 13 5:45am | Replies (45)

Comment receiving replies
@debschmitt

I was just dx with redundant tortuous colon after a colonoscopy. For the last two years and seeing 4 gastroenterologists I was told I had IBS-C and was trying to manage symptoms but not really successful. Miralax was prescribed which only caused nausea. Research has shown that Miralax is no more effective with IBS than a placebo. I also have diverticulitis.
I suffer with pain every morning and sometimes after I eat. Constipation is just a common part of my life with bloating pain, loss of appetite and weight loss. I’m down to 100 pounds. I live alone with no family around. I’m scared. I don’t know what to eat. My doc said just soft food. I’m trying to get this test Sitz beads test completed. Any advice or support is welcomed. I feel like I’m paddling away from the shore.

Jump to this post


Replies to "I was just dx with redundant tortuous colon after a colonoscopy. For the last two years..."

I've mentioned several times on this thread that I found that the squatty potty really helped. It's a stool that you can buy on Amazon or wherever and it puts your colon in the correct position for bowel movements and it's very helpful. I would recommend getting one of those. Also I don't know if this needs to be mentioned cuz you're probably already doing it but you need to drink a lot of water. And then people have also mentioned magnesium. I've read a lot about magnesium but haven't started taking it myself but apparently magnesium draws water into the colon and helps with constipation. I have also found that a probiotic has been very helpful for me. I take one for women that's called unbloat. I would start a food diary and keep track of everything that you eat and how it affects you. I think that's the only way to figure out what's best for you to eat. Once you do that for a while you'll know what bothers you and what doesn't bother you and what you can eat moving forward. I hope this helps.

Your post resonated with my heart!! I am the 70 year old childless widow of a 100% disabled veteran who passed 13 years ago. I love very rural.. and ..was "alone" for a long time..it is very scary and intimidating. I drove myself to ER many times and had horrific experiences..it is very hard to find good health care here.. My journey began about 5 years ago when an antibiotic "ruptured " a hemorrhage in my stomach..I've seen soo many GIs and have had so many misdiagnoses..almost to the point of abuse.. basically.. so first of all (I don't know your religious preference.. but I am a Charismatic Christian.. and I know that with the Holy Spirit we are never alone.. I finally realized this recently.. secondly God will supply all our needs.. ask and you shall receive)..I got down to 98 pounds.. had scurvy (problems with teeth.. I drink 2 Plant based Ensures a day.. vanilla.. has helped my liver AST and ALT to return to normal also vitamin D..I went to a nutritionalist .. have so many food intolerances.. I don't know what to eat..this week finally my new GI diagnosed me with the tortuous colon.. and wanted me to try yet more pills.. Linzess.. etc.. I said NO.. I want the surgery.. so we shall see.. until then.. I have put on 44 pounds.. I eat Thomas English muffins Multigrain for fiber.. (if you don't have gluten intolerance.. limit my milk and on occasion.. about every 3-4 days I take 3 biscadyls and they work.. really clean you out.. sometime uncomfortable..) I may be rambling here.. but I hope some of this helps you.. I battle panic attacks and anxiety having lost 2 husbands who passed and have developed a real fear of food.. now I am working on NO fear here.. faith meets fear at the door..it's hard.. my heart goes out to you and I hope this gives you some comfort.. By the way God brought a Godly man into my life 2 years ago.. good thing 14 trips to ER that year..I will be praying for you!!,,oh I had the sitz marker tests.. the other one with the oatmeal.. gastric emptying is much easier...God bless you !!