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@stephenkogler

Thank you for sharing. My Whipple was 4/24/2023 (the day before my birthday). It was the best birthday present I could’ve asked for. The week in the hospital was hard. The second week at home was harder and the third week was the hardest of all because of the withdrawal symptoms from the opioids. Once I could start walking on a regular basis, things started to improve drastically. Unfortunately, I really struggle digesting animal fat. Everything else seems to be fine. I agree with you that the new digestive and elimination protocol is very different and it’s always good to travel with extra clothes in the car. I was treated at Johns Hopkins hospital and they gave me nine rounds of FOLFIRINOX prior to the Whipple surgery and I’m finishing my final Chemotherapy today. We had to take a break for a few weeks because my white blood cells were too low to treat. I agree with you that your mental state is extremely important. For me, when I was diagnosed, I decided that I would control what I could control, and I would prepare for the worst in the best possible way. I knew it would be hard for my family and in retrospect I believe it was harder for them than it was for me. I could not have done it without my care team, which mainly consisted of my wife and my scientist cousin who would call me four times a week to discuss all the minutia and details of the drugs, bloodwork and treatment protocols. It was a conversation. I looked forward to every day. Best to you all as we go down this often lonely road.

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Replies to "Thank you for sharing. My Whipple was 4/24/2023 (the day before my birthday). It was the..."

Wishing you all the best today. You should be so proud of yourself for making it through all the Chemo. May the future be easier than the past. God bless.

Thanks for sharing! How is your weight? I can digest meat which I never ate much of before all this but have a hard time with beans, broccoli sometimes lettuce and some tomato based sauces. I eat all the time but can’t gain any weight.