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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?
Breast Cancer | Last Active: Sep 11 9:29pm | Replies (227)Comment receiving replies
Hello there. I am very happy to have found this forum. I am 49 years old and just had a breast biopsy last month. I received the results from my breast specialist and she informed me that I have ALH (Atypical Lobular Hyperplesia). I asked if she would remove the small mass but she said that it is no longer “standard of care” to remove it. I found this very odd. She told me that I will have testing every 6 months to monitor the situation and that I should see a Medical Oncologist. The oncologist will discuss medications that can reduce the risk of breast cancer. In addition, I will be having genetic counseling this week. Has anyone else gone through this? And can anyone tell me if their breast specialist told them that removing the mass (ALH) is no longer standard of care?
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Hi! I’m 51 now, but a year ago I was diagnosed with ALH. My doctor did an excisional biopsy. He sent me to an oncologist and she suggested tamoxifen ( but I’m not using it because all the side effects that it can cause). I’m in a close monitoring with mri and mammograms every 6 months. I had DNA testing and was negative. But my sister had DCIS at the age of 36. In June 2023 I had my mri and in July 2023 my mammogram which again came back with 3-4 clusters of microcalcifications. I did one biopsy in August 1st and after that one I did another in August 16 in other area. Both came back with ALH. I just received a call from the breast surgeon’s office that I’ll be close monitoring and that he’s not recommending surgery this time. So I need to wait until my next mammogram in December. This situation make me anxious and nervous.
My insurance provided me with an expert opinion, I’m waiting from them to collect all my medical records in order to receive the the expert opinion/second opinion. Once I receive that opinion I’ll decide if I’m staying with the my breast surgeon or find a new one.