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Now infected with mycobacterium abscessus

MAC & Bronchiectasis | Last Active: May 30 7:34pm | Replies (30)

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@kathleenlp

Hi Polly, Yes, like you I went from the intracellulare to the abscessus over time + Aspergillus + bronchiectasis but was largely asymptomatic so they only treated the Aspergillus. Over the last 1 1/2 years my CT's have actually improved (unexpected), in part from learning and trying many things I learned about here! I study whenever I can and keep a strict regiment with my treatments, EXERCISE! and diet. The sodium chloride was a game-changer + learning the airway clearance that worked best for me. One pulmonary told me it could be hiding away dormant in one tiny place. I liked that idea! I have also been told the IV is the only treatment. The discouraging thing is such a large percentage re-infect after treatment so I would have to really weigh things if it comes to that. Blessings!!

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Replies to "Hi Polly, Yes, like you I went from the intracellulare to the abscessus over time +..."

Hi Kathleen. Thanks so much for your encouraging reply. I still haven’t heard what treatment is going to be recommended and I’m torturing myself with anxious. I also am very strict with myself about diet, exercise etc but I have trouble with airway clearance.Here in NI we don’t get a lot of advice but will ask about the sodium chloride next time I’m at clinic. Best wishes.

Polly, Have you ever been on Voriconazole (vfend)? I am starting month 8 on it for aspergillus.

"The sodium chloride was a game-changer". May I know what %?