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@pmrsuzie

My rheumatologist originally gave me standing orders for monthly crp and sed rate tests. Both were very high at the onset of my pmr. Any time I've had a flare my crp is elevated, the sed rate elevates but is still in normal limits. I'm due for bloodwork now. My current prednisone dose has greatly reduced hand swelling and pain. The beginning of this year I was down to less than 5 mg, no pain, bloodwork every other month and then a flare. My crp level seems to correlate with pain. Occasionally I've experienced some pain but my crp was normal and I seemed to work through it without increasing the prednisone doae. I was told to decrease 1 mg/month this time. I'm now alternating between 8.5 and 8 mg daily to get down to 8 for 2 weeks and then will try alternating between 8 and 7.5. I'm hoping the diet modifications I'm making will help.

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Replies to "My rheumatologist originally gave me standing orders for monthly crp and sed rate tests. Both were..."

My sedimentation rate blood results were high at diagnosis and still high but slightly reduced a week after starting on prednisilone. A week after reaching 8mg when pain had come back, the ESR was in the low normal range. I don't know what it is now, weeks later.

If the pain (tolerable but annoying, worst in the morning) continues till the next doctor's appointment in a few weeks, maybe the ESR needs to be checked again, although pain can apparently occur even with normal ESR levels, as you say. If it is high, I definitely won't be reducing further.