Hello,
I just found your Connect group, and you all are so helpful and full of wisdom!
I was diagnosed with endometriod adenocarcinom grade 1 2b
in April 2023, after postmenopausal bleeding, an ultrasound showing excessively thickened
endometrium, and a polyp (1.7cm) along the right posterior lateral junction of the lower uterine segment and cervix; and the biopsy of endometrium.
Freaked out.....not in my plans now or ever.
I'm in the Houston area, so I found a gynecological oncologist at MD Anderson the next week.
She said what all of you have said: if you're going to have cancer, this is a "good" one to have , because of early symptoms of bleeding.
Had my Robotic assisted total hysterectomy and bilateral salpingo-oopherectomy on May 17, 2023.
Healed for 6 weeks, and my Dr. said she wanted me to have 5 HDR vaginal radiation brachytherapy treatments. I had 1 treatment daily for 5 days. It was prophylactic; specifically targeted to the top of the uterine cuff, where cancer would possibly reoccur, if it would happen. I was a little tired after the treatments, but it didn't last to long. I will say, I enjoyed my nap times.
And then.....the dilator!
I hate it, but I do it 3 days a week for 15minutes. Last wednesday, I got my first UTI. I've never had one before. I think I was using the wrong soap to clean my "tool".
A few questions: I have asked my oncologist if I will have a CT scan at my 3 month checkup in September. She said, No, it's not protocol for your type of cancer. Which, they all say it is totally gone after the surgery and radiation.
But really, how do they really know. And I have read stories about recurrence.
So that worries me.
Right now, I'm still at the beginning of my journey, and hopefully it will be a good one with not too many bad hiccups. Thank you all for your wonderful information!
@bsn69 Welcome to our support group. I’m glad you found us and that you are already finding help and support.
My Gyn-Oncologist said the same thing about no CT needed after I was first diagnosed. She said I would return every 6 months for a physical exam which is how the recurrence was found on the vaginal cuff. For the recurrence I had external beam radiation therapy and 2 treatments of brachytherapy. With radiation I was told it was necessary to use a lubricant regularly because of the formation of scar tissue and to use a dilator. I dislike doing both of those but it’s necessary. I do get a CT scan now because of the recurrence and I’ve been returning for cancer surveillance every 4 months since the recurrence.
I’m very hopeful for you because like your gyn oncologist said the cancer you and I had is a « good one » - as if any are good ones. Now we continue on the journey with you at the beginning and we keep up our good work.
How often do you return for cancer surveillance?