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@pampolo481

Thank you so much for your story. I have a pancreatic neuroendocrine tumor. I had a endoscopy EUS ultrasound done recently. The biopsy came back positive for a stage 1 cancer. I am going for a PET scan on 11 Aug. I have been reading on line a lot. I am very scared that since the tumor is malignant that I might have to have a Whipple. Your story gave me hope. Thank you so much for sharing. I am so sorry to hear about the loss of your husband. I am praying for you.

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Replies to "Thank you so much for your story. I have a pancreatic neuroendocrine tumor. I had a..."

Be thankful you can have the Whipple. Many people cannot.
The data shows that those who will respond to either of the two chemotherapy regimes will fare best if treated both before and after surgery. The problem is that we don’t know who will respond to standard of care chemotherapy. By having a genetic test done at a top cancer center you will be better prepared if you don’t respond to either Folfirinox or Gem/ Abraxne. In the meantime, the surgery will buy you time. If you are fit going in, have an experienced surgeon, you should recover quickly.