← Return to Sudden onset neuropathy and scared

Discussion

Sudden onset neuropathy and scared

Neuropathy | Last Active: Sep 30 8:37pm | Replies (34)

Comment receiving replies
@1oldsoul

Hello @formerfisherman and those who posted replies. I came across your posts and was wondering if you could update us on everyone’s progress. I am in another forum on Blood Cancers as I was diagnosed with MGUS in 2021. I have had occasional mild numbness on the bottom pads of my feet and toes and a burning feeling in my feet since 2020 but I kind of chalked it up to the fact that I walk 3 miles every day and I am almost 70. However, just in the past 6 months something has changed and the peripheral neuropathy is moving half way up my right leg and in my right hand. I saw a neurosurgeon last year who could not find anything in my brain to cause issues but did find degenerative and bulging discs in my neck. I already knew I have this problem as well in my lower spine along with scoliosis and a recent diagnosis of osteoporosis. While the intermittent numbness is not affecting my balance or mobility, I am finding that there are other strange symptoms occurring such as digestive issues, worsening insomnia, fatigue and twitching in my right hand under my thumb that is interfering with my sleep. Very scary when we cannot understand what is happening in our bodies. I am scheduled to see the neurologist again on Tuesday and my GP scheduled me with a Rheumatologist in Dec but that’s a long wait…. Thanks to all and you are all in my thoughts and prayers.

Jump to this post


Replies to "Hello @formerfisherman and those who posted replies. I came across your posts and was wondering if..."

I am so sorry you are going through this. I find it comforting that there are others on this site who are experiencing similar things, have some thoughts, share their experiences and coping strategies - and we have the support to know we are not crazy! It's challenging to have an "invisible" condition that our friends may not understand, or even believe! I'm grateful that my physicians have not chalked this off to being "all in my head" as I too have a history of depression and anxiety. I hope you have good physicians too.

I think your MGUS is heading toward Smoldering Myeloma... This condition exacerbate Neuropathy.... Ask for an exam that is called: Serum protein electrophoresis. Your story is strangely the same as mine!!