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@tabathab

I had an ectopic pregnancy in 2012 and required an emergency surgery. In 2020 I had a right hip replacement at 30 years old because I was told my right hip was that of a 55-year-old. And then had a hysterectomy due to endometriosis and fibroids in 2022.

Now fast forward, I started having pain in my left hip in Dec 2022 and my orthopedic surgeon was suspicious of an autoimmune disease. That was when after months of blood work and doctor's appointments I was just diagnosed with mixed connected tissue disease and polyarthritis. I also have degenerative Bone and Joint Disease in both of my hands and feet along with osteopenia in my lumbar which is a step below osteoporosis.

I just turned 34 in June and although I am relieved to finally have a diagnosis, it is still so overwhelming. I am sort of happy that now I can understand why I needed all of these surgeries and why all of these things happened, it is because of MCTD, but it doesn't make the diagnosis any easier. I suffer from extreme fatigue, feeling unwell, and severe pain in my hands, feet, my left hip that I now need a hip replacement for because of a full labral tear which was not from any sort of injury along with CAM impingement and osteoarthritis...

The doctor believes it is because of MCTD... all of this is so overwhelming for my family and I but reading this story really resonated with me. And as sad as it is, it's nice to know that I'm not alone, but this diagnosis is terrifying. I have a family to take care of, and I am so afraid that one day I'm not going to be able to do the things I can do now for them... This has been an emotional roller coaster to say the least...

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Replies to "I had an ectopic pregnancy in 2012 and required an emergency surgery. In 2020 I had..."

@tabathab
Hello~ Happy belated birthday! You've been through so much. It's easy to see why you're on an emotional roller coaster. I hope that as you get treatment for the underlying cause of everything you're going through that things get better. They have for me. Although I wish I didn't need so many meds (hydroxychloroquine, methotrexate, and Orencia for the MCTD, plus duloxetine and bupropion for depression, which I've had my whole adult life), my quality of life is really good. The fatigue is the worst part, but I also have ADHD and take Adderall for it, which helps with the fatigue. Voltaren gel also helps the joints that don't want to respond to the drugs.
Staying in the present as much as possible and looking for new things to be grateful for every day has helped me manage my anxiety.
It may take some time to find the cocktail of meds and self care that works for you, but I believe you can find it and hope you do too.
If you need someone to listen, please reach out to me. I'm not a counselor or a doctor, but I'm happy to listen.
With care, Erika

Welcome to Mayo Clinic @tabathab . Im really glad that you found us. You have had much to deal with and then come to find out that its caused by an autoimmune disorder. The best thing you can do is to educate yourself. Use the discussions on this forum and start following the Autoimmune Assoc. https://autoimmune.org/resource-center/diagnosis-tips/
Do you have a good rheumatologist? Good ones are well versed in autoimmune diseases. Develop a connection with this doctor so you can be followed through the years.
You will probably have good days and bad days, I think we all do. But, I know you can do this!