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CIDP, While I am waiting for the tests, genetic?

Neuropathy | Last Active: Sep 17, 2023 | Replies (44)

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@SusanEllen66

@sb4ca thank you. You write very well and I appreciate your empathy.
Actually, my dad was diagnosed around 1998-2000. He went to the hospital for treatments on a regular schedule. I don’t know what exactly because I wasn’t living nearby. But, I know he didn’t take any of the other medications he was prescribed because he couldn’t drink alcohol with them! He was alcoholic and that was more important to him.
My poor mom would get angry…
So, there it is. My memories revealed the truth about why he was crippled so bad. He continued to drive, against doctor’s orders. One day he parked along a side street to go to the senior center. He got out of the car into the path of a moving car and was killed. Two days before his 86th birthday.

Thanks again for steering me through this process. I appreciate you.

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Replies to "@sb4ca thank you. You write very well and I appreciate your empathy. Actually, my dad was..."

My God, you poor thing. I'm actually at a loss of words. I'd give you a hug if I could. Given that this seems an obvious genetic disorder, it makes me wonder if perhaps it's a subtype of CIPD. I read several articles in the search you provided and wonder if you saw this. The inherited neuropathies are apparently treated differently than IVIG.
https://www.sciencedirect.com/science/article/abs/pii/S0165572820300072