I love your attitude!  Keep us posted as to how your appointment at Moffitt goes.  I understand that they are experts in lots of fields of cancer. 

It is the way that we prop up each other’s attitudes that help us keep
going. Cancer patients seem to be pretty good at helping each other in that
way. It is a really rotten truth, but it seems like some pretty awesome
people get cancer!

I will let everyone know for sure. I expect I will walk out of there with
lots of questions. Yes, I have heard nothing but good about Moffitt. The
new stats are out and they are in the top 20 cancer hospitals in the
country – # 14 or 16 I think. It is about an hour and a half, but that is
do-able.

Sorry @martid I swore I answered you.. Still getting used to this program.. As usual I’m talking to myself over here.
My head is still spinning 4 months later. I have hyperventilated for the first time in my life.. My stress now has stress. and Every Ache and Pain in my body just got magnified by 1000’s percent. I go to bed every night wondering if this is the night I wake up in a drenching sweat? .I actually wakeup in the middle of the night to check myself to see if I am sweating. No it has not been fun..

I have always been an Overachiever but this is not in the area I had wished to overachieve. I have only had one fear in life, and that has been Dr’s and Hospitals. Plus I never really been sick with anything in life. If I was given a choice, I would rather be on Hijacked plane than have to deal with cancer. I honestly think it would be less stressful.

It’s the not knowing of what is next? That’s is one part I do not like. Plus I have trust issues letting Doctors have full access to ravish my body in a fashion I don’t particularly like. Oh’ we would like to stick this needle in your back while your awake on table under a CT Machine so we can extract a little tissue. It’s no big deal. I am like “your kidding right? Will it be a big deal if I move and you hit my Aorta? I need to be slightly sedated please”…

Yea all that keeps going through my mind is what 4 Doctors keep referring to me as “Rare But Not Unusual”.. And I think well at least, I’m not one of kind? It could be worse.

I think we need to Keep Moving I bought a Fit Bit so I can monitor my every move. It puts pressure on me to move, otherwise I would rather sit on the couch and stare out into outer space. Cause I still think I am dreaming all this up..

I wish you the best, hang in there. Moffitt treats a lot of people where I live. Met many who they were able to cure or treat their cancers very well.

Mayo is 4 hours from me. Since I love to travel I decided I need a hospital that made feel like I was going on a Medical Tourism Vacation. About the only way I can deal with my 2 for 1 Special, Double Trouble, Twice Cursed Diagnosis..

Let us know how your treatments are going? Take Care..

We sound a lot alike; many of the same fears and issues. I had to (sort of)
laugh. I had almost the exact same thoughts when they explained about the
liver biopsy.

Hope your week goes well – keep moving.