← Return to Tapering off of Prednisone

Discussion

Tapering off of Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Feb 28 5:49am | Replies (313)

Comment receiving replies
@johnbishop

@vellen, My rheumatologist gave me tapering suggestions but never told me specific amounts or times to drop to a lower dose of prednisone. Instead he had me keep a daily log of my pain level when I got up in the morning and the dose that I was taking each day. Then he said to only taper down if my pain level was acceptable to me when I got up in the morning. For me that was a 1 or 2 on a scale of 0 to 10. If my pain level was higher than 2 I would bump my dosage up half of the previous amount that I dropped on the last taper to see if the pain went down the next day. When I got to 1 mg, it took me six months of going back and forth between 1 mg and 1/2 mg before I could finally stop taking prednisone and wake up with pain less than a 2.

Jump to this post


Replies to "@vellen, My rheumatologist gave me tapering suggestions but never told me specific amounts or times to..."

If you were at 12.5, and no pain how far would you drop down? I rarely have pain lately. Some back pain of I do too much but I am 68 years old and it's helped with Tylenol.

Oh man. This is just a vent. I didn't hear back on Friday so decided to try 10 mg yesterday. I'm good today so far. I got a notice of an rx filled. I called to make sure both the Pred and Tramadol were filled, Tramadol no, Pred filled 2.5mg. I had just picked up 5mg. What am I supposed to do with 2.5mg? Rhetorical that. Ugh. A call is in to the doctor. I plan to stay on the 10mg but will need the 2mg at some point.
I'm so frusrrated.