Hello everyone, you prob have seen my posts on the Fibromyalgia site. I am a retired RN with huge drive to find solutions god what started as Fibro but progressed to CSS aka CPS in 2018. It progressed bc I have ongoing pain from neck nerve damage from minimally invasive bone spur surgery in 2007. And from a botched T2 epidural in 2010. And Occipital Neuralgia on left. I’ve been in pain 22yrs, too long for the brain to just “swing with the punches”. So we are a sector of pain patients in the US who are extremely discouraged that we can’t find a way to get well. Nor can drs find a cure. We all need a miracle from God but we must not get bitter. Our time of healing will come my friends! Please watch The Chosen on Prime Video or on The Chosen App. It’s about the disciples journey with Jesus the 3 Yrs of His ministry on earth, but the Jesus in the film is so wonderful, so relatable to our lives. He was the only person who ever lived who was 200%: 100% man and 100% God. So he felt all the things we humans feel. You will be so comforted, encouraged, so loved and gain so much spiritual understanding. It will carry you away from the pain u feel while sitting on ur sofa and transport you to something far more important.
As far as what therapies I’m using, they are Lyrica, medical Cannabis and a little Clonazapam at bedtime, some Magnesium Malate during the day bc that’s the form of magnesium that calms the nervous system. I have tried every other therapy with no success. Please Google Dr Ginevra Lipton who is a Dr and has Fibro herself. She has dedicated her practice to teaching others all about Fibro and how to eat to help it not aggravate it. She wrote a great manual on it, The Fibro Manual. And recently another book called Fibro Food Formula. Lots of helps thanks to her.
I am 94 pounds some days, 95 other days. due to sarcopenia. I don’t know how much of that is due to Lyrica and how much is due to cortisol staying elevated 24/7/365. Can any of you share anything about the effects of longtime use of Lyrica? TU and walk with God.