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CIDP, While I am waiting for the tests, genetic?

Neuropathy | Last Active: Sep 17, 2023 | Replies (44)

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@sb4ca

Hi Susan. You’ve likely have heard of small fiber neuropathy. That has a variety of causes and could be restricted to an area as small as a someone’s feet and is typically a sensory dysfunction (what you feel). Motor nerves are much longer nerves that effect the action of the muscles (to move)and typically lack sensory dysfunction (ie numbness). In CIDP the motor nerves have significant delays on testing. And it is true that nerves have an incredible way of rerouting and healing. Otherwise this disease could paralyze someone fairly quickly which it doesn’t. We’ve all heard stories of someone in a bad accident who initially can’t walk etc and the incredible comeback they show by walking again Same principal. I really can’t imagine having that visual about your dad while you are now facing this too. Please remember everyone is so different and that your Dad’s story isn’t your story Think of the incredible advances in medicine that have been made since his time as well

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Replies to "Hi Susan. You’ve likely have heard of small fiber neuropathy. That has a variety of causes..."

@sb4ca thank you. You write very well and I appreciate your empathy.
Actually, my dad was diagnosed around 1998-2000. He went to the hospital for treatments on a regular schedule. I don’t know what exactly because I wasn’t living nearby. But, I know he didn’t take any of the other medications he was prescribed because he couldn’t drink alcohol with them! He was alcoholic and that was more important to him.
My poor mom would get angry…
So, there it is. My memories revealed the truth about why he was crippled so bad. He continued to drive, against doctor’s orders. One day he parked along a side street to go to the senior center. He got out of the car into the path of a moving car and was killed. Two days before his 86th birthday.

Thanks again for steering me through this process. I appreciate you.