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← Return to Permanent SIBO due to removal of ileocecal valve
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Permanent SIBO due to removal of ileocecal valve
Digestive Health | Last Active: Apr 2 6:54am | Replies (191)Comment receiving replies
I am glad a group like this is here. I have no ileocecal valve after twisted colon surgery.3 years ago My surgeon denied it caused SIBO but my GI doctor ( in same hospital group) confirmed it did and said surgeon was "old school" and wrong. Could he have saved the valve? I will never know but surgeons need to be more educated in this area if they are going to continue to perform these procedures. My SIBO is hydrogen sulfide sibo which now, in addition to the intestinal issues, it appears to be creating even more systemic issues ( neuropathy fatigue rashes etcThe xifaxan stopped working and am getting ready to start a new treatment called Alinia, which insurance does not cover, but I dont care about that now. Would love to hear from others esp those who have Hydrogen Sulfide SIBO Thinking about elemental diet; hate to give up food again but getting desearate. Wishing Mayo Clinic did ileocecal valve replacements. Maybe one day.
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Hey there - sorry about all you’re going through! I have my ICV removed about 10 months ago and I have hydrogen sulfide SIBO. I went on an elimination diet (no gluten or dairy for three months) and I found it didn’t do much for me. However, cutting back on sugar (I.e., candy) has helped reduce some of my symptoms. I have found SIBO can mimic symptoms Crohn’s disease. Have you checked into that? Eating smaller, more regular meals has also helped my stomach. I was also put on probiotics for my SIBO and it made things incredibly worse, so that may be something to keep in mind if you’re taking any pre/probiotics. I hope you can find some relief.