Does anyone find that a type of shoe helps your foot neuropathy?

Posted by lorirenee1 @lorirenee1, Mar 25, 2019

I am on a constant quest for shoes that don't kill my feet due to the neuropathy. I find that Spencos and Wolky shoes seem the best. Are there any other suggestions? Shoes can be just crippling for me. Horrid.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@robindancer5678

Good morning. I can’t comment on the pain, but I want to tell you how helpful your first sentence is! My small fiber polyneuropathy was not confirmed by the punch test either. The punch test showed no amyloid, and that the nerve fibers were normal, but I have horrible itching and tingling. My doctor also said that small fiber polyneuropathy is patchy and might not be able to be demonstrated on three small punches. But everything else was ruled out and clinically. He has determined it is Neuropathy. God knows why I have it! Good to know that somebody else clinically presents as small fiber neuropathy without a positive punch test!

Jump to this post

I discovered Dawgs Z sandals when my foot pain started 8 years ago, and I still wear them! Love them. Look on Amazon.

REPLY
@julbpat

I discovered Dawgs Z sandals when my foot pain started 8 years ago, and I still wear them! Love them. Look on Amazon.

Jump to this post

Also, if you want to avoid oral medications, invest in some of the various creams and lotions people have discussed. You can even get a compounded cream prescribed that has Lidocaine, Gabapentin, amitriptyline, etc.

REPLY
@julbpat

I discovered Dawgs Z sandals when my foot pain started 8 years ago, and I still wear them! Love them. Look on Amazon.

Jump to this post

Thank you! I will!
Any leads will help. The bottoms of my feet are worst and pressure from standing just compounds that.
SFN now up to just above knees and starting in hands and sometimes arms. 🙄
I will be very relieved to find the best footwear though!

REPLY
@julbpat

Also, if you want to avoid oral medications, invest in some of the various creams and lotions people have discussed. You can even get a compounded cream prescribed that has Lidocaine, Gabapentin, amitriptyline, etc.

Jump to this post

🙌🏻

REPLY
@needingrelief

Thank you! I will!
Any leads will help. The bottoms of my feet are worst and pressure from standing just compounds that.
SFN now up to just above knees and starting in hands and sometimes arms. 🙄
I will be very relieved to find the best footwear though!

Jump to this post

I wear Birkenstock Mayari sandals with the soft footbed. The toe hold helps raise the top of my foot to walk. I also discovered Xero Minamalist shoes that help me to feel the ground when I walk. I got the Mary Jane style because it has velcro on the strap which helps the fit across the top of my foot. I've had idiopathic neuropathy in my feet for 25 years, and it has now progressed to my knees, and sometimes I feel it in my thighs. I walk 20 minutes 3 times a day after each meal, and do a stretch and balance exercise every day online. I don't take any prescribed meds only vitamins and supplements. My doctor gave me a prescription for a compounded lotion which does help with spasms of burning pain. I try very hard to eat healthy and hope at age 85, I can outlive the last stages of this $#^$#$ disease! So far I'm managing pretty good. My balance has improved and so far I only use a cane when walking outdoors. I hope some of this helps...🥰

REPLY
@julbpat

Also, if you want to avoid oral medications, invest in some of the various creams and lotions people have discussed. You can even get a compounded cream prescribed that has Lidocaine, Gabapentin, amitriptyline, etc.

Jump to this post

I know every Body is different but over 10 years with Gabapentin all but ruined my life, it caused extreme fatigue and slept/nap all day long, hardly reduced pain but hardly was better than nothing. Thank God now that I'm hooked up with VA I am using pregablin and chronic fatigue is all but gone no known side effects for me. Thank God. Pain reduced more than it was.

REPLY
@johnnyguitar

I know every Body is different but over 10 years with Gabapentin all but ruined my life, it caused extreme fatigue and slept/nap all day long, hardly reduced pain but hardly was better than nothing. Thank God now that I'm hooked up with VA I am using pregablin and chronic fatigue is all but gone no known side effects for me. Thank God. Pain reduced more than it was.

Jump to this post

Yes, these seizure meds can be really nasty! I think they change my personality without my realizing it, while also making me so groggy and dumb feeling. I have done very well with Tegretol, but now it isn't really working anymore for my pain. Time to try something else - again!

REPLY
@needingrelief

Hi all! I have idiopathic small fiber neuropathy, which was not conclusively proven with a skin biopsy/punch test. (I have been told by a Neurologist that 50% of those tests are inconclusive, even when everything else points to small fiber neuropathy.)
My symptoms started about 17 months ago, and it took me most of last year to come up with a diagnosis as they ruled out everything else.
One of my biggest challenges is trying to find shoes that I can wear comfortably. I cannot wear closed shoes, or anything that is even the least bit tight. I am wearing sandals most of the time and very loose crocs during the winter and cannot wear socks at all. The straps on the sandals that go across the top of my foot near my ankle, seem to set off a whole lot of pain and so I have to keep loosening those straps throughout the day. I am currently taking gabapentin at 300 mg and duloxetine or Cymbalta at 60 mg. I know that doesn’t sound like much but I am trying to continue to function and work (i’m extremely sensitive to medication’s and it makes me so tired that I can’t function If I take it during the day and also need to minimize dosage, ). so I Take both of those at night and nothing during the day until about 8 PM. I noticed that this pain is getting even worse as time goes on, and I have gradually increased dosages. Once again, it seems like it is worsening. I feel like my shoes set off a lot of this and wondering what other people are wearing?
The burning sensation is always there, but shoes seem to make it worse and worse throughout the day and I am miserable by evening. Of course, standing doesn’t help any either. What do you all wear?

Jump to this post

Hello @needingrelief. Welcome to Mayo Clinic Connect. Finding the right shoe to minimize your symptoms is a big deal, so you will notice I have moved your post into an existing discussion on this very topic where you can read through many responses from other members that may be helpful to you, as well as to respond to those members who have already shared with you.

You can find your post here:
- Does anyone find that a type of shoe helps your foot neuropathy?: https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/

Have you tried the slip-on Sketcher brand shoes? They are roomy enough to slip on yet provide good walking support.

REPLY
@retiredteacher

@lorirenee1 I would love to have the answer for that too. Wonderful question. I have tried soft soles and hard soles and orthopedic inserts and gel inserts. I have found nothing that keeps my feet from feeling as if I'm walking on broken glass. If you find something, will you let me know? I am almost to the point of not being able to walk. I'm sure there are others who would like suggestions too.
Thanks,
Carol @ retired teacher

Jump to this post

My feet are so numb that I literally can’t feel when I walk, and I’m like a weeble.
I wear New Balance sneakers because I also wear a AFO brace on my right foot, and it has to fit in the sneaker.
At times my feet hurt so badly,that I can’t stand on them at all.
Lately I have been putting Salon Pas pads on them, and they seem to help.
I also take Tramadol for the pain.
Any suggestions for footwear would be appreciated, as I’m running out of ideas.

REPLY

Oh, I feel your pain, literally. I came on here to find support for my husband’s metastatic prostate cancer, and saw your question! Today, THIS VERY DAY, was the first day I experienced the level of pain you described.
My question is, how reversible is neuropathy? Or is this a condition that only degenerates over time?
(My right lower leg has been numb from a double laminectomy, L-4- L-5, Toe dropped before surgery & I am left with residual neuropathy pain, and, alternating numbness, tingling and shooting pain. I am thinking, at this point, I may never get back the feeling in the outside of my calf. Just LIVE with it? I am 3 years post op).
Thank you in advance.

REPLY
Please sign in or register to post a reply.