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Recurrence of gynecological cancer

Gynecologic Cancers | Last Active: Aug 8, 2023 | Replies (32)

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@dugoutmom

I was diagnosed with endometrial cancer in 2019. Had a total hysterectomy. 3 years later cancer returns. Started chemotherapy for 18 weeks. Next PET scan cancer free. Six months later cancer returns. Second round of chemo (18 weeks) PET showed 2 remaining cell were small enough to go on maintenance for 54 weeks. Last PET shows I now have 5 cells, two have tripled in size. I am now in a depressed state where I have never been before.

Has anyone experienced this many recurring episodes.

Im going to MDAnderson for a second opinion.

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Replies to "I was diagnosed with endometrial cancer in 2019. Had a total hysterectomy. 3 years later cancer..."

Sounds like a 2nd opinion is a great idea. Many more options for treatment available and research affiliated facilities usually have the most current knowledge.
Best regards,

Hello @dugoutmom!
I am so sorry that you are dealing with so many recurring episodes! Would you be willing to share more details of your cancer? What kind/stage/grade and the treatment you received prior to your recurrences. Did you have lymphovascular invasion? How far into myometrium? Lymph node involvement, etc.? What was the treatment you received after the recurrences?

I finished treatment on June 6th and am in my surveillance phase. I will have one baseline CT in October (they won't do any after that because they don't want to expose me to anymore radiation because of how much I received during treatment.) They said I would have symptoms before something shows up on a scan anyways. Is this true? Did everyone who had a recurrence on this site have symptoms? Did you have symptoms before your scan?

Have you gotten your second opinion from MD Anderson yet? What did they recommend for you? What I can do for you is pray! You are in my prayers as you face this very difficult time in your life. I pray He gives you everything you need to help you with your depression and treatment. God bless you always!