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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
This is an inspiration to me. Hugs and prayers for you. I have Sjorgens for 1 year now, I never heard of this illness before. Thanks to Mayo Clinic connect my main source of education. Doctors don’t explain the devastation of this disease.
I understand this sometimes turn to Lymphoma , so scary.
Any suggestion how to prevent this. What is best to take or do?
Replies to "This is an inspiration to me. Hugs and prayers for you. I have Sjorgens for 1..."
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Hi Cindylb,
Sometimes Sjogrens doesn't show up in your SSA or SSB blood work. But you still have it if you have the symptoms. The best rheumatologist that I ever went too said he diagnosed it from the symptoms as the blood work was so erratic. I don't know how to prevent lymphoma or any of the other diseases that can be a result of Sjogrens. My advice is to keep your eyes moist- I use Systane ultra and drink lots of water. It has worked for me and my eye doc had told me to use it. I did find that if you get a flare- give in to it- rest as much as possible. Since I have started doing that, my flares are now hours- not days.
Take care,
Joan