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Hi, Kitty2. I was on Remicade for my UC, and it had been working well for me. Which is to say, I was pretty solidly in remission. Then for no apparent reason, I had a flare that just wouldn't quit. I had a friend with MS and found that LDN helped restore some of her hand function; she was the one who told me that it supposedly helped UC. My gastroenterologist was skeptical, but he checked the one article he could find in a bona fide medical journal, and decided it would be worth a try. The dosage for UC was 4.5 mg. I took the LDN for about 2 weeks and my flare resolved. I suppose it is possible that it might have resolved on its own, but symptoms lessened very quickly on the LDN. This all happened about 8 years ago, so there might be more current research re: dosage for UC.
Wishing you all the best...
Replies to "Hi, Kitty2. I was on Remicade for my UC, and it had been working well for..."
Hi..thanks for your reply. It was really appreciated. I have been in a flare since having covid december 2021. Nothing has worked. The drugs all caused major side effects and kept me very ill. The last one was Budesonide ...horrible side effects and then I finally found a doctor and he gave me a tapering dose so I could get off of it. They want me on Entyvio ..which scares me due to the risk of a brain infection and major loss of hair. Wondering about the LDN and side effects, I am a long hauler and dont want anything that will affect my UC. Thanks so much for your help. Kitty2
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P.S. to Kitty2. That's 4.5 mg per day. You need a compounding pharmacy to make the capsules for you.