Has anyone stopped Evinity before a yr ?

Yrs I had bone density Dexa scan. It increased . But Endocronologist said I’ve gained pretty much what I can . Now the next step is Prolia . He did not mention Forteo at all . He knew I was on Forteo in the past . But no one ever put me on Tymlos or anything else . Frustrating . That’s why my bones are like. Liquid butter . I have one of the worse cases he’s seen for my age . I’m 64 . I just want to crawl in a hole . Lots of people are telling me to su . Not sure who to even su. My surgeon was not at Mayo . But my family practice was .and is . He should have known .

The time limit has been lifted for Forteo and Tymlos is also a bone builder that works in a similar way. Maybe your doc is right and you have reached the limit of possible improvement but I hope you can get a second opinion. Keith McCormick has a website. He charges maybe $300 for a first appointment but it might be worth it. Or another endocrinologist covered by insurance. Again your doc could be right but I would make sure by getting another opinion. I know that is an overwhelming prospect. I don't mean to add to stress!

The time limit has been lifted for Forteo and Tymlos is also a bone builder that works in a similar way. Maybe your doc is right and you have reached the limit of possible improvement but I hope you can get a second opinion. Keith McCormick has a website. He charges maybe $300 for a first appointment but it might be worth it. Or another endocrinologist covered by insurance. Again your doc could be right but I would make sure by getting another opinion. I know that is an overwhelming prospect. I don't mean to add to stress!

@dreamjean1958 did your doc say why you cannot do Forteo again or Tymlos? You have to go on Reclast after Prolia, and the timing is tricky. Too early and Reclast doesn't work and too late and you have already lost bone.

Perhaps Forteo and Tymlos won't be effective after the Evenity you have done?????

I have lupus and had cancer and my doc agreed Prolia can affect immune system.

You are in a tough spot. I would make an appointment with Keith McCormick and/or another doctor to discuss Forteo or Tymlos after 6 months on Evenity. It is very possible that Prolia IS the best option. But I would want to make sure.

I had heard you could do Evenity after Tymlos or Forteo but not the other way around, possibly because there was little bone growth left to do after Evenity. But I have not seen anything anywhere- including McCormick's book Great Bones- so let us know if it is, indeed, possible to do Forteo or Tymlos after 6 months on Evenity. This is a key question for many and for you!

If your DEXA was done well after finishing Forteo, you have no way of knowing what Forteo did for you, since bone density drops off when you start. Do you think Forteo helped you?

Have you had a DEXA after Evenity to see where you are with bone density now?

Thank you, I think I’m stopping at 6 . I had pain after my 4 th . 5 th got worse and 6 th was in bed for days . Head ache was horrible and the stiffness in my neck. Along with joint pain . Had no clue about any of these side affects What did you get switched to after Evinity . ?

Forteo did amazing for me . I was told before my surgery that my bones were like Butter cream . He would not touch me . I think it was 6 months later . Maybe earlier. Had my neck fusion . What screwed me up. No Dr . No one told me I would need anything else. You only see surgeons for a short time . He was not in Mayo
Although he is one of the best Soine surgeons

The time limit has been lifted for Forteo and Tymlos is also a bone builder that works in a similar way. Maybe your doc is right and you have reached the limit of possible improvement but I hope you can get a second opinion. Keith McCormick has a website. He charges maybe $300 for a first appointment but it might be worth it. Or another endocrinologist covered by insurance. Again your doc could be right but I would make sure by getting another opinion. I know that is an overwhelming prospect. I don't mean to add to stress!

No He said . Nothing will work as good as Prolia for me . He explained it all but it was complicated . He did say if I was in my 80 s
. Than he wouldn’t put me omit . He did say it’s a comittment and I have to show up for all my appts. Some people don’t and miss doses and go out of State . That’s not good . He said in my particular case . Prolia will be the only one he would recommend . I have one of the worst cases he has seen . Due to Dr not following up after Forteo . My bone scan was worse than it was before I got put on Forteo .

Would you share with us what your T score is. Mine is -4.6.
Was told Evenity would be best for me.