Hello @jacb and welcome to the NETs support group on Mayo Clinic Connect. I'm glad that you found this forum. The sharing of experiences with NETs is so important. NETs are unlike other cancers that are well-known. Unfortunately, it is highly unlikely that you will meet friends and neighbors who have had this type of disorder so it is important to find a community such as this.

I see that you posted about controlling nausea. Is this a problem that you are experiencing now?

I look forward to getting to know you as you post here. As this is your first post, please share, as you are comfortable doing so, a little about your NETs journey. Are you new to this diagnosis? Are you in treatment now?

My nausea was horrible. I currently wear a scopolamine base 1 mg patch behind my ear 24x7. I change it every 3 days. I also take LORazepam as needed. I rarely use lorazepam now but they helped me get through some tough times. I am currently am on my 12th cycle. Once done, the doctor wants me to stop taking temozolomide and only take capecitabine. Since my side effects mostly come from the temozolomide, I am all too happy to stop it.