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Specialists for Ehlers-Danlos Syndrome, SIBO, Aeortic Ectasia

Bones, Joints & Muscles | Last Active: Aug 4, 2023 | Replies (7)
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@shcraft

*will also note that my daughter's diagnosis for EDS is the hyper-mobility type. Not the vascular type.

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Replies to "*will also note that my daughter's diagnosis for EDS is the hyper-mobility type. Not the vascular..."
emo | @emo | Aug 3, 2023

Hi- I do have both experience with hypermobility (diagnoses with hyper mobility spectrum disorder, which is very similar to hEDS and has the same treatment approach, but I don’t meet all the clinical criteria) and SIBO and other GI symptoms.

I’m happy to share some info/resources. I’m commuting/heading to work, but just wanted to let you know I’m out here. I’m sure there are others. And hopefully this will also remind me to reply in full when I’m sitting still. Tell your daughter she’s not alone. She’s lucky to have you 🙂

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emo | @emo | Aug 3, 2023

Also, forgot to ask. Do you know what type of SIBO she has?

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