← Return to MAC/NTM is Different for Everyone, Treatment might be different too

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@equanimous

Hi Irene, The Pari Vios works well for me. It is the first neb I've used besides the one I received through Kaiser. The mist coming from the Pari is much more powerful. The only trouble I am having is, I bought new wing tip replacement tubing and, for the life of me, I cannot get the old tubing off the compressor I am going to call Pari today to hopefully get some good advice.
As for the manuka honey, I mostly take it when I am coughing a lot in the evening and know I am going to have a problem with sleep. I will take about a 1/2 teaspoon before bed (or if I have a cough attack in the middle of the night, I'll get up and have it). I am not saying it will work the same for everyone but, for me, it is soothing and helps calm the cough down.
Also, I am a performer and have found having a cup of lemon ginger tea with a generous scoop (about 1 full tsp +) taken before showtime has been working well. Thank goodness! I did not cough once during the past 2 shows! So, I reserve it for times when the cough is active and I use it as a preventative measure (before a show or meeting). It is quite yummy too. I understand your concern about being pre diabetic. Perhaps you can ask your dr if it would be ok to use sparingly. Best of luck to you!

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Replies to "Hi Irene, The Pari Vios works well for me. It is the first neb I've used..."

Thank you for the feedback. I suppose you tried twisting the tubing side to side as well as pulling straight out? I find that works. Just twist it hard to the right or left and pull and it should come off. Otherwise could you not cut the old tubing tip off? I do not know how often you replace the tubing or if you are leaving it on the compressor from treatment to treatment? It is important to run the compressor with the cup removed from the tubing for 3 minutes after each treatment. That helps to dry it out. Then remove tube from the compressor and hang it in a safe clean place till the next use. Replace the tubing every two weeks with new is recommended by NJH. Throw out or recycle the old tube. Nice that you are a performer. I was a singer growing up and performed. Now my bronchiectasis has affected my voice and I can no longer sing. I have to whistle if I feel the urge!

I believe the tubing is easier to remove when the machine has just run and everything is warm