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Small Fiber Neuropathy and Epstein-Barr Virus

Neuropathy | Last Active: 5 days ago | Replies (26)

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@johnbishop

Hi @sfnmcashatsebv, Welcome to Connect. There are a lot of different treatments for small fiber neuropathy. The problem is finding one that helps relieve the symptoms. Here are a couple of references that may provide a connection between EBV and neuropathy.

--- Epstein-Barr Virus and Neurological Diseases: https://pubmed.ncbi.nlm.nih.gov/35083281/
--- Is Epstein-Barr Virus Linked to Autoimmune Disease?: https://www.verywellhealth.com/is-epstein-barr-linked-to-autoimmune-disease-4165847.

There are a couple of other discussions you might find helpful since you mentioned mast cell activation syndrome:
--- Mast Cell Activation Syndrome: What treatments help you?: https://connect.mayoclinic.org/discussion/mast-cell-activation-syndrome/
--- Mast Cell Activation: https://connect.mayoclinic.org/discussion/mast-cell-activation/

Can you share a little more about how you were diagnosed with small fiber neuropathy and what your symptoms are?

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Replies to "Hi @sfnmcashatsebv, Welcome to Connect. There are a lot of different treatments for small fiber neuropathy...."

Sfn pain started about 8 months after initial covid infection , pain began in Sept 2020 . Tested sfn Feb 2021 and biopsy tissue examined tested positive for small fiber neuropathy. A dr told me a few weeks ago a virus was causing sfn. Im not sure but elevated ebv levels must cause an undiagnosed medical problem. Maybe cancer, mold infection i dont know need feep weak and need help to figure this out rapidly. For some reason , xolair of course helps allergy symptoms, but i can tell its helping another sickness that responds to the xolair. Why is my ebv level so high? What other disease does this indicate? I just got diagnosed with a fatty liver