Anyone Have Exp w/T-6 Fracture & Weighted Vest?

Not with the vest but I was diagnosed a little over 10 years with osteoporosis in my lumbar spine after I suffered a serious fracture to my humerus at the age of 27. And a few years following I had a contact sport injury and fractured T6, T8, and T10. A few months after when they decided that my fractures were not healing I had kyphoplasty sx and discovered recently that the sx failed and my spine is in the shape of an S and curves to the right. So if you have any questions pertaining to the vertebra let me know and I'd be happy to answer any questions you may have.

@ilovetrees I posted a comment the other day that I want to reiterate to you. PT’s generally are not that well versed in appropriate, safe, effective treatment for osteoporosis. Only unless they have a certain passion for it and have done their own extra learning, or have gone to extra continuing education courses. Since you are from a small town , I would be skeptical of tip top treatment. I’m told if you go to the American PT Assoc and look for a listing of those in your state/area that have the training to serve those with osteoporosis. I personally have been unsuccessful in finding those in my state /area. Good luck to you, but Margaret Martin will certainly get you off to a good start!! That’s where I started!!!

I'm from Oregon too (and I LOVE and miss my trees!). You may already be familiar with these osteoporosis doctors but just in case you are not, Dr Chaim Vanek and Dr Patricia Burford are both endocrinologists and specialize in osteoporosis. They are located in Portland. Very difficult to get an appointment and you may have to wait a year as a new patient but you can get on a wait list and may get an earlier appt once you are in the system. They both know their stuff.
Since I had always exercised, I was really confused about how to move forward safely and effectively. Burford referred me to a PT that was well versed in osteoporosis. The PT was terrific, knowledgeable and really taught me how to move safely. She was located outside of Portland. I wish I could remember her name but if I find it, I'll post here. If not, perhaps you could call Burford's office and maybe they will give you that info.

Windyshores- is it possible keeping Tymlos pen at room temperature would decrease side effects

I have not found a PT who knows or is comfortable working with advanced osteopororis or a person who has already fractured. They do massage with me!

I have had x-rays with variable results: the composite would be T3 (mild), T4, T6, T11, T12, L1, L2 and L5. I believe 6 or 7 fractures total with some differences in reading. The section T11. T12, L1 (and maybe L2) with adjacent fractures is especially concerning. I did not have kyphoplasty.

But the first T12 fracture was the most disabling and I could not lift much after that. So I think one T6 fracture is something to pay attention to!

@cloud60 NO keeping it at room temperature would not reduce side effects. And if it is kept at room temperature I would not use past 30 days.

The only reason to keep it at room temperature is a supposedly more comfortable injection with liquid that isn't cold. I know this from my kid with type 1 diabetes. With insulin, that is actually true- it is more comfortable. With Tymlos, I find no difference in comfort.

The other reason of course is convenience with travel etc. but I still take it wrapped in a dish towel with ice packs. I think temps are unpredictable in a car and would not risk it getting too hot (or cold).

I would conjecture that the only reason side effects might lessen from having a pen out might be if it was no longer effective! As always ask a doc or pharmacist!

I used my 5 week old refrigerated pen last night and definite side effects .
Today starts my new pen. I have trouble believing that I needed to throw it out but I did throw it out bc in case the chemistry of time makes the medicine turn to poison. I don’t understand with medicines what the passage of time does to the medicines. A chemistry major told me even advil or anything turns to poison . I always thought it just decreases effectivity.

Hello, and welcome.
My last DEXA was at -4.3. I have a history of all five lumbar vertebrae fractured, as well as other fractures at T-10,11 & 12. My endocrinologist told me that I am, most definitely, not a candidate for a weighted vest. She explained that they may be beneficial for people with osteopenia and mild osteoporosis, but with moderate to severe osteoporosis and fracture history, the added burden could produce more fractures. Instead, she recommended walking as much as I can and going up and down the stairs (I live in a 2-story townhouse), stomping my feet. Apparently, the low impact of stomping stimulates bone building. If the stairs are not an option, you can sit down and stomp your feet, as if you were trying to crush a can of soda, alternating three or four stomps, per foot.

I am one of the many for whom Windyshores saved the treatment with Tymlos. I would have never tolerated starting on the full 8 clicks (at 12 weeks, I am still at 6), and would have had to discontinue treatment altogether.
I started out at 3 clicks and moved up a click every week. Seven was too harsh, and I had to skip a day, go back to five for a couple of days, and then up to six. I am comfortable at six: Only nausea for a couple of hours after the shot (used to be all day), and occasional leg cramps that, fortunately, go away laying my foot flat on the floor for a minute and walking around a little.

I am going to try 7 clicks at some point, because I do want to get the most out of this treatment, and I'd rather endure some side effects than go through another fracture. The key has been keeping track of my doses and side effects to observe what works. Also, the time of day for taking the shot. I started out in the morning. Moved to evenings, because some people in this group commented that they felt less effects, maybe because they were during their sleep. Didn't work very well for me. I am now doing it at 3:00 p. m. and trying to be active after the shot. For some reason, side effects last less when I'm active. Not what my body would want. I used to lie down, trying to ease the nausea, but it didn't work for me. I now eat oranges and walk around, and it goes away faster. I guess each person has to look for what works for them since we are all different. My motto in this is: "Whatever works!".

@mmodesti omigosh are we the same person?! Nice to "talk" to someone with a lot of fractures like me (sorry it's you). And I have written that I have found that eating with the shot (especially something salty), hydrating and getting up and going out- all help.

For the first months I stayed in bed and was miserable for those first hours after the shot. Maybe it kept my blood pressure down? Maybe we metabolize it more quickly if active? In any case I am glad you are able to be active after the shot and have found, as I have, that it actually helps!

Thanks! I check d their website last week. Couldn’t find anyone in my
state. So far, the information shared in this group has been the best, and
invaluable. Most grateful.