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@cakodra

I am updating here, which might not be the right place! I’m not sure where to go when I just want to add a short note about my situation. A reminder: I have not been diagnosed officially yet. I saw my doctor on Tuesday, and she did much more in-depth bloodwork and is checking for Lyme disease and lupus and several viral levels. In the meantime, she agreed to a trial of prednisone since I have a rheumatology appointment scheduled for January 2, 2024. I have taken my third prednisone this morning, and the improvement is dramatic. Very minimal pain and stiffness, and my whole body feels looser, if that makes sense. I’m on 20 mg per day to start off, and the trial is for seven days. A note to others in this situation: if you have a rheumatology appointment that is too far off for comfort, as I do, be sure to call that office and get on their cancellation list. The appointment scheduler was quite encouraging when I called to do this. I’m hoping to get in early. Meanwhile I got my Sed rate back, and it has gone from 35 to 45. More helpful evidence. Many thanks to those of you who have offered advice and support at this early stage of my (probably) PMR journey. Best wishes to all of you!

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Replies to "I am updating here, which might not be the right place! I’m not sure where to..."

Glad you’re feeling better and hopefully on the right track, and that you get a rheumatology appointment soon! That’s such a great point about getting on the cancellation/wait list. My father’s rheumatologist also had online scheduling, so I checked every few days, but you can’t always do that as a new appointment.

Sometimes I’ve also called the scheduler every few weeks because even if you’re on the list, there can be a gap between when something opens up and when they call you and I’ve been able to grab an opening that way.