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New to pancreatic insufficiency. What does this journey look like?

Digestive Health | Last Active: Aug 9 4:00pm | Replies (15)
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@janf27

I have been trying to locate one in my area who takes Medicare or who will even return my calls! I live in Florida so lots need help. I started Creon & FODMAP in Dec.
I have been on strict FODMAP diet for 8 months & off all supplements till recently when I begged my gastro to let me please take calcium since my osteopenia turned to osteoporosis this year. He was Agst all supplements. I have used the Monash Univ app & bought 2 books
I have read that you shud not stay on strict FODMAP for a length of time. My dr retired & i am waiting to see new one but all things indicate deficiencies.

I want to reintroduce some foods that had been eliminated, but the book on FODMAP is based on being IBS Free! EPI, as you know is in a different league.
1. Have you had any success In reintroducting foods over the years???
2. I contacted names from list of Academy of Nutritions and Dieticians.
Does anyone have any suggestions of how i can get a Dietician who knows EPI
Most were focused on other issues
Appreciate any help, I feel like I am in limbo. Thanks for listening

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Replies to "I have been trying to locate one in my area who takes Medicare or who will..."
grannydee | @grannydee | Aug 3, 2023

I hope that I can explain to you they “why” I chose my nutrition! We are different. Obviously, but what that means to each individual is that we have to start with a list of foods that are TRADITIONALLY easier to digest, ALL the whole realizing that what YOU are able to tolerate may be radically different than what someone else with EPI can tolerate!
This is just one of the reasons WHY it can look so different from one person to the next with EPI! For instance,
I’ve met others with EPI that cannot tolerate dairy, but I can…others that can digest pork, I cannot! A registered dietician can really be a big help.
All the best! Advocate for help, understanding and respect! You deserve it!

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