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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)Comment receiving replies
Hi Cindylb, I have had Sjogrens since I was a teenager and now I am 79. I was so lucky to have met a dentist -30 yrs ago-who had experience with dry mouth etc. He said to be careful with toothpaste and mouthwash, as most have a drying agent! He told me to use the Biotene products- toothpaste, gel and spray. I have trouble taking pills as my throat is so dry so I spray my throat with the Biotene spray and then I don't choke!! I have had multiple surgeries- hip cataract- brain- and the anesthesiologists all have told me it's ok to spray my mouth with the Biotene spray before the surgery. Since I have the Sjogren's dry cough, the spray really helps. These are over the counter products and not very expensive. Oh, the gel helps get rid of mouth sores! I hope this helps.
Joan
Replies to "Hi Cindylb, I have had Sjogrens since I was a teenager and now I am 79...."
This is an inspiration to me. Hugs and prayers for you. I have Sjorgens for 1 year now, I never heard of this illness before. Thanks to Mayo Clinic connect my main source of education. Doctors don’t explain the devastation of this disease.
I understand this sometimes turn to Lymphoma , so scary.
Any suggestion how to prevent this. What is best to take or do?
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I haven't seen the Biotene spray....I'm going to look for that. I can't take pills either. Maybe this will help. I wish I'd joined the Sjogren's Support group on here 4-5 years ago (before my actual diagnosis), when I suspected I had it.....I would have found so many tips to manage it, vs. now...the problems are more extreme. Thank you!