← Return to My Daughter's cyst growing at the bottom of her brain

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@macw

Hello, Our 11 yr old daughter had surgery in March of this year as her brain was cascading through the base of her skull. The same concern about spinal fluid traveling to her brain was a portion of the concern. While there was not cyst, not addressing it meant that a cyst could appear and her symptoms (headaches and lack of breathing during sleeping) may continue to worsen. We had surgery removing the top vertebrae, a portion of her skull and then the lining of her brain was cut and a patch put in to give her more room. The surgery went fantastic and her recovery has as well. Mayo in MN was super - they have so much knowledge and do this routinely. I will be sending prayers for answers for you and your family. I know that the 6-8 months once we understood what was going were some of the hardest days of my life. Counseling, prayers and support from my family was the only way I made it through. Blessings to you.

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Replies to "Hello, Our 11 yr old daughter had surgery in March of this year as her brain..."

Oh my goodness.... what a journey your family have had. I am so glad to read that all went well for your beautiful little girl. Thankyou so much for taking the time to email me i really do appreciate it. We are in Australia and find this group amazing wonderful support, I would be lost without it now. I might look up if Mayo are in Australia as well and have doctors here. Take care and sending a big hug.