← Return to Has anyone stopped Evinity before a yr ?

Discussion

Has anyone stopped Evinity before a yr ?

Osteoporosis & Bone Health | Last Active: Sep 14, 2023 | Replies (54)
Comment receiving replies
@dreamjean1958

My Dr just took me off Evinity . I was on for 6 months . Side affects kept getting worse Started at 4 th I believe . The 6 th were pretty bad . Joint stiffness . My neck was so stiff that I had a horrible headache for days . Felt cruddy . He said I get the most benefits from Evinity the 1 st 6 months . Now wants me on Evinity. . I’m scared . Have read on here it’s bad . Had an hr discussion with him and he saids it’s the best for me . I read bad for your immune system. I have a really good immune system So now what? I couldn’t sleep last night . This just scares me . It all does . I have a very poor bone density . Went on Forteo and no one ever told me I needed a drug after So for 4 yrs my bones rapidly deteriorated . Mine are like liquid butter . It’s so sad . I’m not sure what to do I’m scared . This all stinks

Jump to this post

Replies to "My Dr just took me off Evinity . I was on for 6 months . Side..."
windyshores | @windyshores | Aug 3, 2023

@dreamjean1958 did your doc say why you cannot do Forteo again or Tymlos? You have to go on Reclast after Prolia, and the timing is tricky. Too early and Reclast doesn't work and too late and you have already lost bone.

Perhaps Forteo and Tymlos won't be effective after the Evenity you have done?????

I have lupus and had cancer and my doc agreed Prolia can affect immune system.

You are in a tough spot. I would make an appointment with Keith McCormick and/or another doctor to discuss Forteo or Tymlos after 6 months on Evenity. It is very possible that Prolia IS the best option. But I would want to make sure.

I had heard you could do Evenity after Tymlos or Forteo but not the other way around, possibly because there was little bone growth left to do after Evenity. But I have not seen anything anywhere- including McCormick's book Great Bones- so let us know if it is, indeed, possible to do Forteo or Tymlos after 6 months on Evenity. This is a key question for many and for you!

If your DEXA was done well after finishing Forteo, you have no way of knowing what Forteo did for you, since bone density drops off when you start. Do you think Forteo helped you?

Have you had a DEXA after Evenity to see where you are with bone density now?

VIEW AND REPLY