← Return to Small Fiber Neuropathy and Epstein-Barr Virus

Discussion

Small Fiber Neuropathy and Epstein-Barr Virus

Neuropathy | Last Active: Nov 10 8:34pm | Replies (26)
Comment receiving replies
@sfnmcashatsebv

hello

why yes! I am a patient affected by long covid i have following relentless extreme small fiber neuropathy/mast cell activation sydrome/hereditary alpha tryptesemia/EBV AB VCA IGG 449.0 RESULT this week.
A very smart dr told me that a virus is driving my small fiber neuropathy, but he couldnt help any further. There has to be a connection with EBV and small fiber neuropathy. Is there treatment for this?

Jump to this post

Replies to "hello why yes! I am a patient affected by long covid i have following relentless extreme..."
John, Volunteer Mentor | @johnbishop | Aug 3, 2023

Hi @sfnmcashatsebv, Welcome to Connect. There are a lot of different treatments for small fiber neuropathy. The problem is finding one that helps relieve the symptoms. Here are a couple of references that may provide a connection between EBV and neuropathy.

--- Epstein-Barr Virus and Neurological Diseases: https://pubmed.ncbi.nlm.nih.gov/35083281/
--- Is Epstein-Barr Virus Linked to Autoimmune Disease?: https://www.verywellhealth.com/is-epstein-barr-linked-to-autoimmune-disease-4165847.

There are a couple of other discussions you might find helpful since you mentioned mast cell activation syndrome:
--- Mast Cell Activation Syndrome: What treatments help you?: https://connect.mayoclinic.org/discussion/mast-cell-activation-syndrome/
--- Mast Cell Activation: https://connect.mayoclinic.org/discussion/mast-cell-activation/

Can you share a little more about how you were diagnosed with small fiber neuropathy and what your symptoms are?

VIEW AND REPLY